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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Down Syndrome Blog
Parent's Guide To Down Syndrome

Author and Down Syndrome Advocate- Most Recent Posts

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

Another Poem About the Truth

Grown Ups & Downs, The Innocent Prince|

The truth is people born with 47 chromosomes have been locked away left alone and died alone in voids of confusion and loneliness throughout history and throughout the world The truth is Some still do ... 47 chromosomes do not preclude a human from learning from feeling from reaching for more Science can see this trisomy before a mother feels her child developing Science cannot see possibility Science cannot tell the future Neither can you Neither can I The truth is I need help to facilitate my son’s reach

April is…

Grown Ups & Downs, The Innocent Prince|

Your Heart in that antiseptic room your tiny chest opened   once considered a miracle living recovery   now science medical possible   in my wallet a diagram a heart with arrows circles concerns   I run with you running you through life   For enough life whatever we get should be enough   Is that possible? probably not we take create pack in every minute   all we get is a few precious minutes here and there   you make minutes matter you bring joy you create hope

Brushfield Spots – The Coolest Genetic Trait Ever

Grown Ups & Downs|

I was one of those moms that stared at her baby constantly. I marveled at him. Luckily, my friends also enjoyed this pastime. Maybe because we were broke. Staring at Marcus staring at the ceiling fan, or lying next to him and staring at the ceiling fan, was a hobby we could all afford.

Also because he was beautiful, he smiled readily, and his eyes sparkled.

I watched his deep blue eyes, expecting them to change into brown, or hazel, or in-between-green-and-something-else, like mine.

After he turned a year old, I celebrated the knowledge: Those blue eyes are here to stay!

A few months later he was at an evaluation of some sort with several clinical and scary looking people and one of them used the words: “Brushfield spots.”

Down Syndrome Author News, Events, Opinions

Marcus is part of a program teaching playwriting

Former North drama teacher Jennifer Castello-Scott, now a freelance drama educator, devised the curriculum. She enlisted the help of author and speaker Marcus Sikora, who has Down syndrome. Marcus was involved in this cool program to teach the kids. Here's a lovely article in the Omaha World Herald about the program: Circle Theatre works with schools on playwriting project for special education students   Read on!    

By | February 25th, 2018|Categories: Grown Ups & Downs, In the News|0 Comments

Momaha: How I went from gold medal worrier to luckiest mom I know

Published on Momaha via Omaha.com earlier this week: Earlier this month, I stood next to my son, Marcus, while he spoke to a room of more than 1,200 spectators. It was unbelievable to witness. The event was the star studded "Be Beautiful, Be Yourself" fashion show, which took place Nov. 11 in Denver. The Global Down Syndrome Foundation hosts this event each year to raise money to continue research and improve medical care for people with Down syndrome. Marcus was named the 2017 "Be Beautiful, Be Yourself" Ambassador. As the parent of an adult with Down syndrome, I have been a

By | November 22nd, 2017|Categories: In the News|Tags: , |0 Comments

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