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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Mardra Sikora - Down Syndrome Author
Down Syndrome Blog
Down Syndrome Author
Down Syndrome Author

Author and Down Syndrome Advocate- Most Recent Posts

Why Marcus is Getting His Haircut at Home (Or Down Syndrome and Covid – Part Two)

Grown Ups & Downs|

We will be celebrating Marcus’ birthday next weekend. The big Three-O. Oh yeah! And all celebrations will be virtually shared with friends and family from our home. Here’s the deal, you can believe your life is not at risk by whatever outside actions you are enjoying and, actually, for yourself, you may be right. But hear this – that is not the case in our house. In fact, I live in paralyzing fear that I’m not stringent enough about our exposure factors. Allow

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

The Friction of Reentry

Grown Ups & Downs|

Let’s talk about reentry. To Work of course Marcus’ first outings where human contact is possible (but masked) so far have been limited to coming to work with me on the weekends. No surprise as we are the “work club.” Yesterday he helped by placing sample description labels in folders. From a previous Building the Future Gala event, Marcus and Jeff Quinn. Advocacy Recognition Our first big outing will be at an event where Marcus will be recognized for his advocacy work by our local DSA, the

A Healing Balm for the Down Syndrome Community and Allies

Grown Ups & Downs|

The Global Down Syndrome Foundation each year hosts a fabulous event called Be Beautiful, Be Yourself. At this year’s event on November 14th,  we’re going to celebrate. We’re going to cry. We’re going to push forward. I’m the mother of an adult with Down syndrome.  There’s so much that I want to tell you, I hardly know where to begin… Shall I start with 2020 and Covid? Of how scared I am…I fear the possibility that my very breath can bring in a virus that kills people with Down

Down Syndrome Author News, Events, Opinions

Changing the World

I shared this article with Marcus: "16 People With Down Syndrome Changing the World" He replied with "Yes, I am." This article from The Mighty rocks with some big-time accomplishments and names, including the Marcus Sikora. 🙂 On our Facebook Page - we encouraged everyone to share about the person with Down Syndrome you know - who is changing the world! Check out the full article on The Mighty Here.

By |November 21st, 2018|Categories: In the News|Tags: , , |0 Comments

Look Who’s on Yahoo Celebrity Lifestyle News!

The article begins... "Several celebrities walked the red carpet and the runway in the 10th anniversary “Be Beautiful, Be Yourself” Fashion Show Saturday, Oct 20. The crowd cheered and mingled with the likes of Colin Farrell, Jeremy Renner, Heather Graham and more! What makes this event especially impactful is the transformation of star-power when the models take to the runway. This photo is a great example. I mean come on! That guy in the background, he’s cool and famous and all (award-winning actor John C. McGinley) but I think we can all agree that Kate Winfield and Claire Hepburn are

By |November 7th, 2018|Categories: In the News|Tags: , , |0 Comments

Not New News, but News Worth Sharing

Talents of Omaha author Marcus Sikora shine in first children’s book A friend of mine sent me a picture of this article in print when it published two years ago. I stumbled upon the online version yesterdy while doing a Google search with my name mis-spelled. What? Nevermind, the crux is: Here's this cool article about Marcus! It begins: Omaha author Marcus Sikora, who created a children’s book about a monster band, recently met with first and second graders of Elkhorn’s Arbor View Elementary School, providing insight into the writing process of his first book. Sikora, who wrote the Halloween-themed

By |August 26th, 2018|Categories: In the News|Tags: , |0 Comments

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