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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Down Syndrome Blog
Parent's Guide To Down Syndrome

Author and Down Syndrome Advocate- Most Recent Posts

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

Cure

Grown Ups & Downs|

“If you could cure…” I stopped him, “That is not a fair question.” The scientist raised his eyebrows. ... How can you speak of “cure” when the issue in discussion is in every cell of his body? ... What does it feel like to have 47 chromosomes? I wonder. Does it feel different than 46? Every cell in our body contains our chromosomal makeup.  Cells constantly regenerate, each set (or triplicate) of chromosomes generating and regenerating as well. Sometimes cells in the typical population, triplicate the 21st chromosome, here

The Center of the Cycle is Loving

Grown Ups & Downs|

  Currently and As Always... loving, craving, demanding, questioning, worrying #TBT Post Loving. From the moment I met him, and each day since, I marvel at the miracle that is Marcus. At times I muse at how he doesn’t look like me, or much like the child, I thought I would have created. No. He looks just like him. He does in so many ways act like the child I thought I’d have, he’s dramatic and funny and creative. And more than anything, he is loving. He is loving,

Learning to Celebrate Love

Grown Ups & Downs|

Bringing a circle of support around two people is beautiful. My favorite weddings combine celebration, tradition, and personality, with the rituals chosen on purpose, a specific and unique start to their new adventure together. Last year we went to the wedding of my dear friend, Christine. The small congregation of close friends and family spontaneously sang her down the aisle of the small chapel. The scene was gorgeous on a beautiful island off of Seattle. It propelled me to live like we have 100 Junes.   Also last year,

Down Syndrome Author News, Events, Opinions

Momaha: How I went from gold medal worrier to luckiest mom I know

Published on Momaha via Omaha.com earlier this week: Earlier this month, I stood next to my son, Marcus, while he spoke to a room of more than 1,200 spectators. It was unbelievable to witness. The event was the star studded "Be Beautiful, Be Yourself" fashion show, which took place Nov. 11 in Denver. The Global Down Syndrome Foundation hosts this event each year to raise money to continue research and improve medical care for people with Down syndrome. Marcus was named the 2017 "Be Beautiful, Be Yourself" Ambassador. As the parent of an adult with Down syndrome, I have been a

By | November 22nd, 2017|Categories: In the News|Tags: , |0 Comments

Front Page News

For the second time, Marcus is Front Page News.   Today's Headline: Omaha actor, writer, advocate wears many hats Ambassador for Down syndrome group will walk the runway this weekend It begins: Last year, Marcus Sikora — a 27-year-old Omaha writer, actor and fashion model with Down syndrome — got to walk the runway with an Oscar-winning actress. This weekend, he'll walk with another. Sikora is the 2017 ambassador for the Denver-based Global Down Syndrome Foundation. He's also a model in the organization's annual Be Beautiful Be Yourself Fashion Show. The events draw some pretty big names. Last year, Sikora

Events

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April 6 @ 9:30 am - 10:30 am

School Event

April 17 @ 8:00 am - 10:00 am

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