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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Down Syndrome Blog
Parent's Guide To Down Syndrome

Author and Down Syndrome Advocate- Most Recent Posts

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

Bitter Bouquet – Flash Fiction

The Innocent Prince|

Dried petals and stems standing in clouded water greeted him. Never before had these rewards of his affection appeared less than perfectly tended. She provided tending. Provided status, security. She cultivated his reputation and ambition. In the beginning, he signified his passion with red roses. Then the bouquets arrived bigger, more elaborate, and overflowed with color, camouflaging the guilt. Each blossom signified devotion, but not fidelity. Well-tended consolation prizes. Until she realized that a living rose bush, even with all its thorns, better reciprocated the life and beauty she

Who will be Moved to Stop the Cruel Child Separation Policy?

Change Your World, Grown Ups & Downs, The Innocent Prince|

Fair warning and disclaimer: these opinions are, in fact, my own. Move. Families across the globe move because they are forced to flee. Many more remain in hiding, are tortured, and die a long, slow, and painful death of body and spirit. Homes are ripped away due to war. Discrimination. Segregation. Oppression. Asylum, a word of hope. A process of desperation. Shall I ever have to plead for Asylum? I don’t know. Policies, as they stand currently, mean my family is not welcome to relocate in most English-speaking countries.

On the Patience Necessary

Grown Ups & Downs|

Ahhh, Patience...

Grandma just moved into her new apartment so we went to to the store and meandered ever so slowly down the aisles to gather her list. A new toilet brush (though there were house-keepers cleaning the apartment), a gallon of bleach (don’t argue), crackers and snacks (to supplement the three complete meals served daily).

To be fair, she was also healing from heart surgery, so Marcus and I walked each careful step beside her.

Skip ahead to: shopping complete.

Marcus and Grandma waited outside the door while I pulled the car up to the curb. We unloaded the groceries and, as is the custom, Marcus headed off to do his duty of returning the cart.

I helped Grandma into the car and moved into the driver seat. I saw Marcus go in and could feel from the distance a little confusion. What he’s used to is a cart corral outside, but since we were so close to the front he took the cart inside. When he walked through the doors he could see to his left where the cards were corralled, but that area was blocked off. He had to continue through another set of double doors to return the cart, then proceed to the exit doors to come out. Little tricky. I could see him trying to work this out. I waited. I knew he would. And he did.

Down Syndrome Author News, Events, Opinions

Marcus is part of a program teaching playwriting

Former North drama teacher Jennifer Castello-Scott, now a freelance drama educator, devised the curriculum. She enlisted the help of author and speaker Marcus Sikora, who has Down syndrome. Marcus was involved in this cool program to teach the kids. Here's a lovely article in the Omaha World Herald about the program: Circle Theatre works with schools on playwriting project for special education students   Read on!    

By | February 25th, 2018|Categories: Grown Ups & Downs, In the News|0 Comments

Momaha: How I went from gold medal worrier to luckiest mom I know

Published on Momaha via Omaha.com earlier this week: Earlier this month, I stood next to my son, Marcus, while he spoke to a room of more than 1,200 spectators. It was unbelievable to witness. The event was the star studded "Be Beautiful, Be Yourself" fashion show, which took place Nov. 11 in Denver. The Global Down Syndrome Foundation hosts this event each year to raise money to continue research and improve medical care for people with Down syndrome. Marcus was named the 2017 "Be Beautiful, Be Yourself" Ambassador. As the parent of an adult with Down syndrome, I have been a

By | November 22nd, 2017|Categories: In the News|Tags: , |0 Comments

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