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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Mardra Sikora - Down Syndrome Author
Down Syndrome Blog
Down Syndrome Author
Down Syndrome Author

Author and Down Syndrome Advocate- Most Recent Posts

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

Come So Far And Yet

Grown Ups & Downs|

  Just less than thirty years ago, I was handed a book written for parents of a new baby with Down syndrome that began with, “Do not put your baby in an institution.” Literally, this was the first line of the book. Still, a social worker asked if we were “taking the baby home.” Sigh. Today I know women who coach doctors and nurses about how to share information about possible, potential, and available, instead of “put away.” Be Beautiful, Be Yourself Last weekend Marcus

Dignity, Risk, Harness, Support

Grown Ups & Downs|

As for me...   To be clear, When I look at this view I am not filled with excitement or exhilaration. I am filled with fear and anxiety. It’s said that fear can’t kill you...I wonder. I’ve mentioned before about my father and brothers, they often make decisions pursuing pleasure, whereas I often make decisions based on avoiding pain. In fact, I wonder if we even process pain, and the memory of pain, in the same ways. In the strengths finder application, my brother, Tim (who took this photo)

The Most Generous Holiday

Grown Ups & Downs|

Halloween It’s no surprise to me how many people we’ve met that tell us that Halloween is their  favorite holiday, and/or the favorite of a person they love with Down syndrome. There’s a lot of theatrics to Halloween. You can be whatever you want and people are like…cool! In my experience, Halloween is the most generous of holidays. Although it can be secular in who may choose to participate, it’s not secular on who is welcomed and included. In fact, everyone is included no matter how

Down Syndrome Author News, Events, Opinions

Changing the World

I shared this article with Marcus: "16 People With Down Syndrome Changing the World" He replied with "Yes, I am." This article from The Mighty rocks with some big-time accomplishments and names, including the Marcus Sikora. 🙂 On our Facebook Page - we encouraged everyone to share about the person with Down Syndrome you know - who is changing the world! Check out the full article on The Mighty Here.

By |November 21st, 2018|Categories: In the News|Tags: , , |0 Comments

Look Who’s on Yahoo Celebrity Lifestyle News!

The article begins... "Several celebrities walked the red carpet and the runway in the 10th anniversary “Be Beautiful, Be Yourself” Fashion Show Saturday, Oct 20. The crowd cheered and mingled with the likes of Colin Farrell, Jeremy Renner, Heather Graham and more! What makes this event especially impactful is the transformation of star-power when the models take to the runway. This photo is a great example. I mean come on! That guy in the background, he’s cool and famous and all (award-winning actor John C. McGinley) but I think we can all agree that Kate Winfield and Claire Hepburn are

By |November 7th, 2018|Categories: In the News|Tags: , , |0 Comments

Not New News, but News Worth Sharing

Talents of Omaha author Marcus Sikora shine in first children’s book A friend of mine sent me a picture of this article in print when it published two years ago. I stumbled upon the online version yesterdy while doing a Google search with my name mis-spelled. What? Nevermind, the crux is: Here's this cool article about Marcus! It begins: Omaha author Marcus Sikora, who created a children’s book about a monster band, recently met with first and second graders of Elkhorn’s Arbor View Elementary School, providing insight into the writing process of his first book. Sikora, who wrote the Halloween-themed

By |August 26th, 2018|Categories: In the News|Tags: , |0 Comments

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