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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Mardra Sikora - Down Syndrome Author
Down Syndrome Blog

Author and Down Syndrome Advocate- Most Recent Posts

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

Here we Go – 2024!

Grown Ups & Downs|

Happy New Year! I’m starting 2024 with a bit of a free-write update for our friends who are keeping track. Back in 2013 It was upon the advice of the internet that I named this website mardrasikora.com, however, the overwhelming reason for most visits, is to check out the life, day-to-day and otherwise of Marcus Sikora. (My adult son with Down syndrome.) This Year's Holiday So, let’s talk about Marcus at the family and friends over the holidays. He’s a delight, first off. Christmas is  magical in his presence

Some of the Marcus Equation

Grown Ups & Downs|

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests. IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test when he was maybe three or four years old. He communicated mostly with action/expression and sign language. But not that day, well I take it back...he was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or would

The People You Meet

Grown Ups & Downs|

Hello Friends, TBH  - The following thoughts come from a journal note jotted few years back - but it could have been yesterday. I’m thinking of the people we meet, when we’re walking down the street, or...in Marcus and my case, when we sit at the bar. Like the other night, Marcus and I went to a nearby restaurant and sat at the bar. Given the option, he prefers to sit at the bar. I asked him if this is so he can talk to other people or because

Down Syndrome Author News, Events, Opinions

Changing the World

I shared this article with Marcus: "16 People With Down Syndrome Changing the World" He replied with "Yes, I am." This article from The Mighty rocks with some big-time accomplishments and names, including the Marcus Sikora. 🙂 On our Facebook Page - we encouraged everyone to share about the person with Down Syndrome you know - who is changing the world! Check out the full article on The Mighty Here.

By |November 21st, 2018|Categories: In the News|Tags: , , |0 Comments

Look Who’s on Yahoo Celebrity Lifestyle News!

The article begins... "Several celebrities walked the red carpet and the runway in the 10th anniversary “Be Beautiful, Be Yourself” Fashion Show Saturday, Oct 20. The crowd cheered and mingled with the likes of Colin Farrell, Jeremy Renner, Heather Graham and more! What makes this event especially impactful is the transformation of star-power when the models take to the runway. This photo is a great example. I mean come on! That guy in the background, he’s cool and famous and all (award-winning actor John C. McGinley) but I think we can all agree that Kate Winfield and Claire Hepburn are

By |November 7th, 2018|Categories: In the News|Tags: , , |0 Comments

Not New News, but News Worth Sharing

Talents of Omaha author Marcus Sikora shine in first children’s book A friend of mine sent me a picture of this article in print when it published two years ago. I stumbled upon the online version yesterdy while doing a Google search with my name mis-spelled. What? Nevermind, the crux is: Here's this cool article about Marcus! It begins: Omaha author Marcus Sikora, who created a children’s book about a monster band, recently met with first and second graders of Elkhorn’s Arbor View Elementary School, providing insight into the writing process of his first book. Sikora, who wrote the Halloween-themed

By |August 26th, 2018|Categories: In the News|Tags: , |0 Comments

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