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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Down Syndrome Blog
Parent's Guide To Down Syndrome

Author and Down Syndrome Advocate- Most Recent Posts

The Video Of Marcus Speaking at the United Nations

Grown Ups & Downs, In the News|

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom,

My Heart Vs The Monsters

Grown Ups & Downs|

hen I decided to venture out into Blogland, I wanted to share our experiences and teach people, to be positive and tell positive stories. To share the good truths. Also Tragedy Then, just as I entered the blog world, a horrible and preventable tragedy, introduced me to another range of allies and advocates.

Dear 2018

Grown Ups & Downs|

In 2015 I said, I want it all. (Also, I said Publish) In 2016 I said, Purpose. In 2017 I said, Patience. In 2018, I say: Produce. (Also, Stretch. And Clear. But these aren’t as alliterative, so they’re forced to be a subtitle.) Dear 2018, I’m still a little tired from 2017, recovering from a good, no – more than good, a seriously incredible line-up that 2017 delivered. (Holy cow, where do I even start on the links? Try this.) Every year I say I’m scaling back on this

Some of the Marcus Equation

Grown Ups & Downs|

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests. IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test, he was three. He communicated mostly with action/expression and sign language. But not that day, well I take it back. He was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or did not. One moment that stood out,

Down Syndrome Author News, Events, Opinions

Momaha: How I went from gold medal worrier to luckiest mom I know

Published on Momaha via Omaha.com earlier this week: Earlier this month, I stood next to my son, Marcus, while he spoke to a room of more than 1,200 spectators. It was unbelievable to witness. The event was the star studded "Be Beautiful, Be Yourself" fashion show, which took place Nov. 11 in Denver. The Global Down Syndrome Foundation hosts this event each year to raise money to continue research and improve medical care for people with Down syndrome. Marcus was named the 2017 "Be Beautiful, Be Yourself" Ambassador. As the parent of an adult with Down syndrome, I have been a

By | November 22nd, 2017|Categories: In the News|Tags: , |0 Comments

Front Page News

For the second time, Marcus is Front Page News.   Today's Headline: Omaha actor, writer, advocate wears many hats Ambassador for Down syndrome group will walk the runway this weekend It begins: Last year, Marcus Sikora — a 27-year-old Omaha writer, actor and fashion model with Down syndrome — got to walk the runway with an Oscar-winning actress. This weekend, he'll walk with another. Sikora is the 2017 ambassador for the Denver-based Global Down Syndrome Foundation. He's also a model in the organization's annual Be Beautiful Be Yourself Fashion Show. The events draw some pretty big names. Last year, Sikora

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