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Marcus Sikora Global’s 2017 Ambassador Video

2017-11-26T09:50:00-06:00Categories: Grown Ups & Downs|Tags: , , , , , , , , |

Marcus’ Big Night

at the Be Beautiful, Be Yourself 

included a tribute video.

To start with, Marcus gave a speech in front of 1200+ people under the spotlights. (That speech is here). He spoke to journalists and faced the flashing cameras on the runway. (One of my favorites is here). And he ROCKED the runway. Marcus and the Stars!

Like most successful, public events, it came after a lot of practice. He practiced his speech. He practiced his model “moves.” It also helps how many big events he has been a part of this year, TV interviews, speaking

Actor, Singer, PB&J Connoisseur – Introducing 2017 Be Beautiful Be Yourself Ambassador: Marcus Sikora

2017-09-21T10:32:46-05:00Categories: In the News|Tags: , |

From the Global Down Syndrome Foundation official release:

As an author, singer, actor and self-advocate, Marcus Sikora has already accomplished more in his life than most other 26-year-olds. Now he’s gathering yet another accomplishment as the 2017 Be Beautiful Be Yourself Ambassador.

When it comes to describing the Nebraska native, many people tend to use the word creative. The description aligns perfectly with Marcus’ ambitions, in 2015 he released his first animated short and children’s book Black Day: The Monster Rock Band to wildly positive reviews.

“I’ve always liked to make stories,” Marcus

Music Therapy: Benefits and Our Experience

2024-03-03T09:14:09-06:00Categories: Grown Ups & Downs|Tags: |

Photo Provided by Megan Catalibe Photography

Marcus has always been a performer in addition to a creator. The microphone is his instrument of choice. In his teen years and early adulthood, he often enjoyed going to Karaoke Nights with our friends. His specialty songs included Harry Belefonte’s “Banana Boat Song” and The Blues Brothers, “Soul Man,” among others. And, as you may know, in 2015 with the book launch of Black Day: The Monster Rock Band,

Some of the Marcus Equation

2023-12-05T17:48:27-06:00Categories: Grown Ups & Downs|Tags: , , , , |

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests.

IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test when he was maybe three or four years old. He communicated mostly with action/expression and sign language. But not that day, well I take it back...he was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or would not.

At one point, the psychiatrist held before Marcus a doll with

A Healing Balm for the Down Syndrome Community and Allies

2020-10-27T13:43:26-05:00Categories: Grown Ups & Downs|Tags: , , , |

The Global Down Syndrome Foundation each year hosts a fabulous event called Be Beautiful, Be Yourself. At this year’s event on November 14th,  we’re going to celebrate. We’re going to cry. We’re going to push forward. I’m the mother of an adult with Down syndrome.  There’s so much that I want to tell you, I hardly know where to begin…

Shall I start with 2020 and Covid? Of how scared I am…I fear the possibility that my very breath can bring in a virus that kills people with Down syndrome at

Imagining

2020-07-23T09:13:09-05:00Categories: Grown Ups & Downs|Tags: , , , |

Can you imagine?

Can you imagine a live action, or maybe a stage scene, based on the Alice and Wonderland characters Mad Hatter, played by Stephen Fry, the March Hare played by Lin Manual Miranda, and the door mouse is Patton Oswald…? Marcus imagined this and I would love to see it!

Marcus, Aristotle, and Douglas Adams Advice

2020-06-28T18:09:59-05:00Categories: Grown Ups & Downs|Tags: , , , , , |

In my young adulthood, I frequently said, “This is no time to panic…” Often at random moments, to no one in particular, mostly at work. 

After reading the book series, The Hitchhiker’s Guide to the Galaxy, then seeing the classic BBC TV of the same name, the simpler phrase “Don’t panic” including a cheeky smirk and a deep sigh is a common refrain in my household. 

The first time I recall Marcus purposefully using the phrase “Don’t panic” was a memorable audition night in Denver seven or so years ago. 

How Much Love, Worry, and Wishes

2020-06-16T11:13:14-05:00Categories: Grown Ups & Downs|Tags: , , , , , |

I admit that when Marcus was a child, the future scared me. A whole lot. In fact, I used to cry on his birthday more out of fear than joy. Seems silly now, it’s just – look at that kid! He was so full of life and I had the devil whispering on my shoulder…

Finally, I woke up and noticed the futility of all those years of asking, “What are you going to do when he grows up?”

Everyone Needs Help

2020-06-16T07:17:43-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , , , , |

A Gift From the Universe to Change the World

coffee shop

My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations building there earlier this year. Today I write solo and the notebook to my right has the lyric, “The universe is resting in my arms” (from Nina Gordan’s song “Tonight”) written and

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