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Marcus Sikora Global’s 2017 Ambassador Video

2017-11-26T09:50:00-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , , |

Marcus’ Big Night

at the Be Beautiful, Be Yourself 

included a tribute video.

To start with, Marcus gave a speech in front of 1200+ people under the spotlights. (That speech is here). He spoke to journalists and faced the flashing cameras on the runway. (One of my favorites is here). And he ROCKED the runway. Marcus and the Stars!

Like most successful, public events, it came after a lot of practice. He practiced his speech. He practiced his model “moves.” It also helps how many big events he has been a part of this year, TV interviews, speaking

Actor, Singer, PB&J Connoisseur – Introducing 2017 Be Beautiful Be Yourself Ambassador: Marcus Sikora

2017-09-21T10:32:46-05:00Categories: In the News|Tags: , |

From the Global Down Syndrome Foundation official release:

As an author, singer, actor and self-advocate, Marcus Sikora has already accomplished more in his life than most other 26-year-olds. Now he’s gathering yet another accomplishment as the 2017 Be Beautiful Be Yourself Ambassador.

When it comes to describing the Nebraska native, many people tend to use the word creative. The description aligns perfectly with Marcus’ ambitions, in 2015 he released his first animated short and children’s book Black Day: The Monster Rock Band to wildly positive reviews.

“I’ve always liked to make stories,” Marcus

Legacy of Love

2019-10-05T12:16:18-05:00Categories: Grown Ups & Downs|Tags: , , , , , |

Immortality

One day, several years ago, my father asked me, “Why do you want to be a writer?”

“Immortality” I answered.

I think this is common for artists. Since accepting the challenge to write and share about Legacy, I’ve seen it sprinkled in many songs and art references. Pretty much the entire musical of Hamilton is obsessed with the theme of legacy.

Early in 2018, the lead singer of The Cranberries, Dolores O’Riordan, died at 46. Forty-Six. Too young. She touched many lives in her short life and her work will live on. This song, “When You’re Gone”  begins with the line, “Hold

Some of the Marcus Equation

2019-08-01T16:37:10-05:00Categories: Grown Ups & Downs|Tags: , , , , |

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests.

IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test, he was three. He communicated mostly with action/expression and sign language. But not that day, well I take it back. He was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or did not.

One moment that stood out, the psychiatrist held before Marcus a doll with its head off, laying

The Storyteller and the Truth – Part One

2019-07-26T19:18:46-05:00Categories: Black Day, Grown Ups & Downs|Tags: , , , , , , , |

 

I remember emotional points, touch the bruises, and swim in the revelation. However, I have a terrible time trying to remember dates. At what age did I learn to ride a bike? When was my first road trip? Even important moments, like when did my son take his first steps? When did he begin using complete sentences? Or when did he start, really start, to tell me the stories that play through his imagination? Marcus just turned 27 and I think I’ve been saying “for over ten years” for three, maybe four, years.

I could dig back into the notebooks.

Parceling Love and Other Conundrums

2019-07-20T11:57:11-05:00Categories: Grown Ups & Downs|Tags: , , , |

The prompt today is “Love (a free-write)”. Free-writes are by nature personal and rambling.

Also, because my laptop is having issues, we’re going Avant Garde with punctuation. The question mark will be signified with /.

Enter at your own risk.

Of the 468 blogs currently on my website, the search term “love” brings up 233 results. Of those, 12 “headlines” include love in the title.  So, yeah, I’ve been known to talk about love.

To start with, there’s “WHAT ONE YOUNG MAN WITH

Another Broadway Rundown

2019-06-16T10:02:36-05:00Categories: Grown Ups & Downs, The Innocent Prince|Tags: , , , , , |

Times Square and theatre fuel Marcus’ busy brain like nothing else. He absorbs and reflects the energy and passion.

When Marcus is one of a group of many, it’s hard for him to be heard and share his ideas. When he and I travel alone, especially on a theatre trip, he shares constantly; we chat together non-stop. In fact, this last trip I marveled internally at how much he had to say in every conversation, never at a loss for words.

I used to think that…

2019-05-16T22:01:27-05:00Categories: Grown Ups & Downs|Tags: , |

Wedding Day.
When I was thin.
I got over it.

Today I’m responding to the prompt: I used to think (but I don’t anymore).

Here are five that came to mind.

Walking the Thin Line:

I used to think it would be better for me to be dead than have any fat on my body.

Since then,…bad news and good news. 

Oh boy, do I have fat on my bones.

But glad to be alive. 🙂 

 

Learning the Hard Way:

I used to

A Life Uncontained (And baseball memories with Video)

2019-04-28T12:09:21-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , , |

I’m reminiscing today because later this week I plan to join some business colleagues at a White Sox baseball game, it got me thinking about our few, yet powerful, baseball experiences. Like the time Three years ago Marcus threw the opening pitch at our local baseball field. I think he nailed it. It was a fun game with other DSA families. I also got “locked out” of Facebook that day for sharing too many photos, I guess…? I don’t know, actually, but here’s the video Facebook made anyway

Where Creativity Grows

2019-05-04T09:30:06-05:00Categories: Grown Ups & Downs|Tags: , , |

For those of you new around here, creating is a big deal in our house. Marcus, Quinn, and I are creative souls. 

Our home is full of storytelling, improv, and music. And love allows for, promotes, and pushes us to keep creating. We create together and encourage separately, it’s an important dynamic in our love for each other and our love of art, music, words, stories, and on and on…

The starving artist and other tropes that define creativity as coming only from pain (are) frequent and believed as the only