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Marcus Sikora Global’s 2017 Ambassador Video

2017-11-26T09:50:00+00:00Categories: Grown Ups & Downs|Tags: , , , , , , , , |

Marcus’ Big Night

at the Be Beautiful, Be Yourself 

included a tribute video.

To start with, Marcus gave a speech in front of 1200+ people under the spotlights. (That speech is here). He spoke to journalists and faced the flashing cameras on the runway. (One of my favorites is here). And he ROCKED the runway. Marcus and the Stars!

Like most successful, public events, it came after a lot of practice. He practiced his speech. He practiced his model “moves.” It also helps how many big events he has been a part of this year, TV interviews, speaking

Actor, Singer, PB&J Connoisseur – Introducing 2017 Be Beautiful Be Yourself Ambassador: Marcus Sikora

2017-09-21T10:32:46+00:00Categories: In the News|Tags: , |

From the Global Down Syndrome Foundation official release:

As an author, singer, actor and self-advocate, Marcus Sikora has already accomplished more in his life than most other 26-year-olds. Now he’s gathering yet another accomplishment as the 2017 Be Beautiful Be Yourself Ambassador.

When it comes to describing the Nebraska native, many people tend to use the word creative. The description aligns perfectly with Marcus’ ambitions, in 2015 he released his first animated short and children’s book Black Day: The Monster Rock Band to wildly positive reviews.

“I’ve always liked to make stories,” Marcus

Back to School (Of Rock!)

2018-10-19T10:42:59+00:00Categories: Black Day, Grown Ups & Downs|Tags: , , , |

Rocking Influences

Marcus and Alice Cooper

Marcus has met a few celebrities in his time, as you’ve seen if you hang about a bit. Some of the artists have been true inspirations to Marcus’ work.

The first was Alice Cooper a few years ago, obviously a huge influence on Black Day: The Monster Rock Band. (You can follow up on that here: “Worlds Collide” )

Another Influencer

This last Friday night we attended an Omaha Performing Arts event that featured Brian D‚’Arcy James.  You may know him from films, we know his

What Marcus Taught Me in Iceland

2018-09-23T09:47:46+00:00Categories: Featured on Grown Ups, Grown Ups & Downs|Tags: , , , , |

The Most Important Lesson from our Trip Happened in Iceland.

Can you imagine what it’s like to have your own child’s value, as a human being, debated? A world where you regularly encounter the opinion of scientists and doctors who are literally working to eliminate the entire segment of humanity of which your child is a part…and it all happens without public outrage. In fact, it is happening throughout entire cultures.

I frequently listen to the band Of Monsters and Men when I am writing. I love their lyric videos and their melodies drive emotion. Of Monsters and Men happen

Who will be Moved to Stop the Cruel Child Separation Policy?

2018-06-16T20:51:40+00:00Categories: Change Your World, Grown Ups & Downs, The Innocent Prince|Tags: , , , |

Fair warning and disclaimer: these opinions are, in fact, my own.

Move.

Families across the globe move because they are forced to flee. Many more remain in hiding, are tortured, and die a long, slow, and painful death of body and spirit.

Homes are ripped away due to war. Discrimination. Segregation. Oppression.

Asylum, a word of hope.

A process of desperation.

Shall I ever have to plead for Asylum? I don’t know. Policies, as they stand currently, mean my family is not welcome to relocate in most English-speaking countries. We are born Americans. However, if we want to emigrate, or if circumstances

Another Poem About the Truth

2018-04-16T16:50:18+00:00Categories: Grown Ups & Downs, The Innocent Prince|Tags: , , |

The truth is
people born with 47 chromosomes have been locked away
left alone and died alone
in voids of confusion and loneliness
throughout history and throughout the world

The truth is
Some still do

47 chromosomes
do not preclude a human from learning
from feeling
from reaching for more

Science can see this trisomy
before a mother
feels her child developing
Science cannot see possibility
Science cannot tell the future
Neither can you
Neither can I

The truth is I need help
to facilitate my son’s reach
toward his potential
The truth is he has dreams for his future
do you have dreams, too?

The Promise – We Belong

2018-02-23T10:50:40+00:00Categories: Grown Ups & Downs|Tags: , , , , |

Wedding days are full of promise.

Promises made and promises kept.

This picture is from Quinn and my wedding day and it speaks of promise like no other.

Pretty much the universal favorite pic from our wedding day. Quinn and Marcus.

 

Sure, there were promises, vows – you know, between Quinn and I. However, those are the obvious ones, the “givens” of the day. The look between these two, it speaks to our life together, to comitment, to belief, to trust – this, my friends, shows a lifetime of promise.

Cure

2018-02-17T12:47:38+00:00Categories: Grown Ups & Downs|Tags: , , , , |

“If you could cure…”

I stopped him, “That is not a fair question.”

The scientist raised his eyebrows.

How can you speak of “cure” when the issue in discussion is in every cell of his body?

What does it feel like to have 47 chromosomes? I wonder. Does it feel different than 46?

Every cell in our body contains our chromosomal makeup.  Cells constantly regenerate, each set (or triplicate) of chromosomes generating and regenerating as well. Sometimes cells in the typical population, triplicate the 21st chromosome, here and there. But it’s scant –