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Marcus Sikora Global’s 2017 Ambassador Video

2017-11-26T09:50:00+00:00 Categories: Grown Ups & Downs|Tags: , , , , , , , , |

Marcus’ Big Night

at the Be Beautiful, Be Yourself 

included a tribute video.

To start with, Marcus gave a speech in front of 1200+ people under the spotlights. (That speech is here). He spoke to journalists and faced the flashing cameras on the runway. (One of my favorites is here). And he ROCKED the runway. Marcus and the Stars!

Like most successful, public events, it came after a lot of practice. He practiced his speech. He practiced his model “moves.” It also helps how many big events he has been a part of this year, TV interviews, speaking

Actor, Singer, PB&J Connoisseur – Introducing 2017 Be Beautiful Be Yourself Ambassador: Marcus Sikora

2017-09-21T10:32:46+00:00 Categories: In the News|Tags: , |

From the Global Down Syndrome Foundation official release:

As an author, singer, actor and self-advocate, Marcus Sikora has already accomplished more in his life than most other 26-year-olds. Now he’s gathering yet another accomplishment as the 2017 Be Beautiful Be Yourself Ambassador.

When it comes to describing the Nebraska native, many people tend to use the word creative. The description aligns perfectly with Marcus’ ambitions, in 2015 he released his first animated short and children’s book Black Day: The Monster Rock Band to wildly positive reviews.

“I’ve always liked to make stories,” Marcus

Dear 2018

2018-01-06T17:47:18+00:00 Categories: Grown Ups & Downs|Tags: , , , |

In 2015 I said, I want it all. (Also, I said Publish)

In 2016 I said, Purpose.

In 2017 I said, Patience.

In 2018, I say: Produce.

(Also, Stretch. And Clear. But these aren’t as alliterative, so they’re forced to be a subtitle.)

Dear 2018,

I’m still a little tired from 2017, recovering from a good, no – more than good, a seriously incredible line-up that 2017 delivered. (Holy cow, where do I even start on the links? Try this.)

Every year I say I’m scaling back on this or that, every year my husband doesn’t believe me, and I defend that

Some of the Marcus Equation

2017-12-17T12:58:32+00:00 Categories: Grown Ups & Downs|Tags: , , , , |

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests.

IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test, he was three. He communicated mostly with action/expression and sign language. But not that day, well I take it back. He was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or did not.

One moment that stood out, the psychiatrist held before Marcus a doll with its head off, laying

How Alike Do We Have to Be?

2017-12-11T20:00:41+00:00 Categories: Grown Ups & Downs|Tags: , , , , |

In about 5th grade I thought, “I hope when I have a daughter she’s not too pretty. Pretty girls…they don’t understand anything.”

In fact, when I was pregnant, of all the things I feared, I feared having a daughter.

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I had one big birthday party when I was 6. It was a whopper, my whole grade was there. We ran across the lawn with raw eggs on spoons. There was a huge array snacks and more games. A long table made of planks and concrete blocks, perfect for 6 year olds to fit around. The radio was

Momaha: How I went from gold medal worrier to luckiest mom I know

2017-11-22T18:42:22+00:00 Categories: In the News|Tags: , |

Published on Momaha via Omaha.com earlier this week:

Earlier this month, I stood next to my son, Marcus, while he spoke to a room of more than 1,200 spectators. It was unbelievable to witness.

The event was the star studded “Be Beautiful, Be Yourself” fashion show, which took place Nov. 11 in Denver. The Global Down Syndrome Foundation hosts this event each year to raise money to continue research and improve medical care for people with Down syndrome. Marcus was named the 2017 “Be Beautiful, Be Yourself” Ambassador.

As the parent

Marcus’ Speech at the Be Beautiful Be Yourself Event (Video)

2017-11-19T15:35:57+00:00 Categories: Grown Ups & Downs|Tags: , , , |

SO, it’s been a week now.

One week since Mr. Marcus Sikora did his second runway walk at the Be Beautiful, Be Yourself fashion show. I can tell you now that at the event last year, Marcus told me that he wanted to give his own speech at this event. That it was not my idea. I even, gently, asked him a few times, “Are you sure?”

His answer, “Yes.”

So, he did.

Marcus in a top hat speaking at the podium of the Global Down Syndrome Event

We shared the video of his

Marcus and the Stars

2017-11-20T18:25:46+00:00 Categories: Grown Ups & Downs|Tags: , , , , , , , , , |

Are you effing kidding me?! I want to tell you all about everything, but…is  too much! Pictures are worth a thousand words, right? So let’s start with this video:


Alright, yeah, Jamie Foxx was cool.

Then there was Madeline Stuart, her Mum, and entourage, I was a bit of a fan-girl, there. I tried to look calm, but I’m not gonna lie – the fact that she walked alongside Marcus at the finale’ just made my heart EXPLODE.

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Front Page News

2017-11-10T14:39:13+00:00 Categories: Grown Ups & Downs, In the News|Tags: , , , , |

For the second time, Marcus is Front Page News.

 

Today’s Headline:

Omaha actor, writer, advocate wears many hats

Ambassador for Down syndrome group will walk the runway this weekend

It begins:

Last year, Marcus Sikora — a 27-year-old Omaha writer, actor and fashion model with Down syndrome — got to walk the runway with an Oscar-winning actress. This weekend, he’ll walk with another.

Sikora is the 2017 ambassador for the Denver-based Global Down Syndrome Foundation. He’s also a model in the organization’s annual Be Beautiful Be Yourself Fashion Show. The events draw some pretty

Starter Press for Be Beautiful, Be Yourself

2017-11-05T17:29:48+00:00 Categories: In the News|Tags: , , |

Global Down Syndrome Foundation’s fashion show brings out the stars

Models with Down syndrome, such as 2017 Global Down Syndrome Foundation Ambassador Marcus Sikora, will be joined on the runway of next month’s Be Beautiful Be Yourself Fashion Show by such celebrities as Oscar-winning actress Maris Tomei, Eva Longoria, Joe Manganiello, Tony-winning Denis O’Hare, actor-author-comedian and Global board member John C, McGinley, Jamie Foxx and more. International supermodel and apparel designer Madeleine Stuart will receive the 2017 Quincy Jones Exceptional Advocacy Award at the glamorous event.

Read More –