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Vigils For Ethan Saylor

2015-01-21T15:46:46-06:00Categories: Grown Ups & Downs|Tags: , , |

When someone we love is robbed from us, it feels like the world should stop. Actually, it does. For a moment. And we look around us, jealous that others are still living, working and being alive.  – From “A Mother’s Tears

We are nearing the two year anniversary of the death of Ethan Saylor, a man I never knew, but who has been in my thoughts much since I first read his name. Over the last few months Ethan’s name has come into the press with a few mentions as

Ethan Saylor – Nearly One Year

2014-01-05T21:09:20-06:00Categories: Grown Ups & Downs|Tags: , , , , |

What is merely a nightmare to me is truth to another.

Nearly one year ago Patti Saylor drove to a local movie theater to help her son, Ethan, get a new movie ticket or convince him it was time to come home, and by the time she arrived he lay dead on the theater floor.

I do not know Patti Saylor and I never knew Ethan.

I love someone who also could have died in that situation.

Robert Saylor Tragedy and Us – Original Post

2015-01-08T08:34:56-06:00Categories: Grown Ups & Downs|Tags: , , , , |

I often say that 95% of the world is great to Marcus. Then I do everything I can to protect him from the other 5%. I never dreamed that 5% would include the police. The news about Robert Saylor, who died in police custody, is a nightmare. Every parent, I think, upon seeing a tragic situation wonders, Could this happen to my child? To Us? The press indicated that the police report says the Mr. Saylor, a man with Down syndrome, refused to leave a movie theater, kicked and cursed at the police. While I feel my son would not do this, even in his most stubborn moments, I also fear that perhaps Mr. Saylor did not either. And even if he did…was he so threatening to the police they had to place him face first onto the ground?

Patti Saylor NDSS Advocate of the Year

2014-03-07T09:41:46-06:00Categories: Grown Ups & Downs|Tags: , , |

As a mother, I…

I hardly have the words, and as you have seen, that’s something.

Whenever I pray to whatever it is I am praying to, I pray I never have to show her strength, her commitment, her ambition to continue fighting.

I did not want to share this on the same page as the Ethan’s Law post, it felt a bit like guilt-bribery. Which many of you know I am not opposed to as a general rule, so I recognize it. However, I do want you to see this. So,

Ethan’s Law and an Unedited Rant

2014-03-16T11:44:23-05:00Categories: Grown Ups & Downs|Tags: , , , |

Hello readers, as you can imagine our excitement grows with every day closer to our deadline. As of today we are almost halfway to our five thousand dollar goal and have twenty-five days left on the clock.

This past week I was fortunate enough to watch Patti Saylor accept the honor of Advocate of the Year from the National Down’s Syndrome Society. The evening was bittersweet and full of reminders of the steps taken to transcend her son’s death.

Robert Saylor and You

2013-06-21T13:34:44-05:00Categories: Grown Ups & Downs|Tags: , , , |

The report indicates that Saylor's death by asphyxiation is certified as a homicide because the man would not have died if it weren't for the presence of the officers. In response to a call for an independent investigation, the DOJ representative is quoted as saying, “We’re trying to assess the situation and see how much community tension there is.”

The People You Meet

2023-12-05T17:48:34-06:00Categories: Grown Ups & Downs|Tags: , , |

Hello Friends,

TBH  – The following thoughts come from a journal note jotted few years back

– but it could have been yesterday.

I’m thinking of the people we meet, when we’re walking down the street, or…in Marcus and my case,

when we sit at the bar.

Like the other night, Marcus and I went to a nearby restaurant and sat at the bar. Given the option, he prefers to sit at the bar. I asked him if this is so he can

My Heart Vs The Monsters

2018-01-12T17:44:27-06:00Categories: Grown Ups & Downs|Tags: , , , , |

hen I decided to venture out into Blogland, I wanted to share our experiences and teach people, to be positive and tell positive stories. To share the good truths. Also Tragedy Then, just as I entered the blog world, a horrible and preventable tragedy, introduced me to another range of allies and advocates.

Living Like We’ve Got 100 Junes

2020-06-13T17:59:10-05:00Categories: Featured on Grown Ups, Featured on home page, Grown Ups & Downs|Tags: , , , , , |

Hey June,

I’m not ready for you yet!  I had so many good intentions for May, and yet the bills are still scattered on the dining room table, because my office is still in disarray, and even the rebounder trampoline is still covered in papers I meant to get to. Get To. (Sigh)

Ah but June…

I am typing this from my back porch with the birds chirping away. The breeze is ever so slight. There’s not a cloud in the sky and I’m sitting in the shade from a giant cottonwood. My neighbor’s dogs start


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