About Mardra

This author has not yet filled in any details.
So far Mardra has created 485 blog entries.

Our Story of Down Syndrome: The Short Version

For the first 21 years or so of Marcus’ life, 

“Down syndrome” didn’t really come up,

and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this?

Boring.

Not to me, you understand. But to an outsider. Seriously. What exactly is so exciting about going to work and going to school and living in Middle America? Not the stuff of reality TV programming. And I was

Everyone Needs Help

A Gift From the Universe to Change the World

coffee shop

My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations building there earlier this year. Today I write solo and the notebook to my right has the lyric, “The universe is resting in my arms” (from Nina Gordan’s song “Tonight”) written and

Once Upon a Time

Love…True Love

In my teen years, I thought love was all fire and ice. Love was meant to be an extreme emotion full of passion, rage, jealousy, and greed. Love meant big fights and deep pain, only real love caused the kind of pain that proves how true the love is. 

Obviously (or not) I didn’t have many, maybe any, positive relationship role models at the time. So, I relied on music, movies, and books for love directions. 

Oh. Dear. 

Therefore the tropes of forbidden love, violent, and reckless love were bought and sold by me as the truth.

The Pros and Cons of Sharing Online

From http://www.omaha.com/sarpy/ralston/reid-adler-had-a-vigor-for-life/article_279a98f8-2940-59b4-989c-8d5db0ced411.html

The Message that The Internet is Forever…

While speaking at a Listen to Your Mother Event,  I met a mother whose middle son died by suicide. She bravely shared about how his life was cut short because of two bad decisions. 

When a picture he shared privately, became public (after being tormented with the possibility for no one knows how long) he decided that humiliation was more than he could bear. His life ended at aged 15. 

How many times have