Our Story of Down Syndrome: The Short Version

For the first 21 years or so of Marcus’ life, 

“Down syndrome” didn’t really come up,

and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this?

Boring.

Not to me, you understand. But to an outsider. Seriously. What exactly is so exciting about going to work and going to school and living in Middle America? Not the stuff of reality TV programming. And I was

2020-02-17T16:06:03-06:00Categories: Featured on Grown Ups, Grown Ups & Downs|Tags: , , , , , , , , |13 Comments
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What Marcus Taught Me in Iceland

The Most Important Lesson from our Trip Happened in Iceland.

Can you imagine what it’s like to have your own child’s value, as a human being, debated? A world where you regularly encounter the opinion of scientists and doctors who are literally working to eliminate the entire segment of humanity of which your child is a part…and it all happens without public outrage. In fact, it is happening throughout entire cultures.

I frequently listen to the band Of Monsters and Men when I am writing. I love their lyric videos and their melodies drive emotion. Of Monsters and Men happen

2020-02-08T10:45:13-06:00Categories: Featured on Grown Ups, Grown Ups & Downs|Tags: , , , , , |17 Comments
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Living Like We’ve Got 100 Junes

Hey June,

I’m not ready for you yet!  I had so many good intentions for May, and yet the bills are still scattered on the dining room table, because my office is still in disarray, and even the rebounder trampoline is still covered in papers I meant to get to. Get To. (Sigh)

Ah but June…

I am typing this from my back porch with the birds chirping away. The breeze is ever so slight. There’s not a cloud in the sky and I’m sitting in the shade from a giant cottonwood. My neighbor’s dogs start

2020-06-13T17:59:10-05:00Categories: Featured on Grown Ups, Featured on home page, Grown Ups & Downs|Tags: , , , , , |7 Comments
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Our Amazing Adventure

To my son

Sometimes, the dreaming, the planning, and the anticipation that build up a destination are all part of the excitement. Other journeys take unexpected turns, are filled with surprising delights, and have anxious moments. They lead us out of our comfort zones, seeing, touching, and exploring worlds new to us. Our journey so far, has been both.

Soon you will turn 27, and I feel as blessed as ever to be on this amazing adventure with you.

The day you were born, I held you in my arms and our path

2017-09-23T10:51:19-05:00Categories: Featured on Grown Ups, Featured on home page, Grown Ups & Downs|Tags: , , , , , |13 Comments
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