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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

The Friction of Reentry

Let’s talk about reentry.

To Work of course

Marcus’ first outings where human contact is possible (but masked) so far have been limited to coming to work with me on the weekends. No surprise as we are the “work club.”

Yesterday he helped by placing sample description labels in folders.

From a previous Building the Future Gala event, Marcus and Jeff Quinn.

Advocacy Recognition

Our first big outing will be at an event where Marcus will be recognized for his advocacy work by our local DSA, the Building the Future Gala. He’ll give a short speech and several of our  friends/family will be there. 

 

A Healing Balm for the Down Syndrome Community and Allies

The Global Down Syndrome Foundation each year hosts a fabulous event called Be Beautiful, Be Yourself. At this year’s event on November 14th,  we’re going to celebrate. We’re going to cry. We’re going to push forward. I’m the mother of an adult with Down syndrome.  There’s so much that I want to tell you, I hardly know where to begin…

Shall I start with 2020 and Covid? Of how scared I am…I fear the possibility that my very breath can bring in a virus that kills people with Down syndrome at 10x the rate of the typical population? As I work to keep our basic necessities available, how should I best balance productivity and safety? I recognize this struggle affects each family and loved one who is vulnerable at this time.

Do I

The Most Generous Holiday

Halloween

It’s no surprise to me how many people we’ve met that tell us that Halloween is their  favorite holiday, and/or the favorite of a person they love with Down syndrome.

There’s a lot of theatrics to Halloween. You can be whatever you want and people are like…cool!

In my experience, Halloween is the most generous of holidays. Although it can be secular in who may choose to participate, it’s not secular on who is welcomed and included. In fact, everyone is included no matter how you look or speak. Anyone who

Events

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