In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.
Following the “rules of blog” – I sometimes share moments from then (we have 33 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
Music Therapy: Benefits and Our Experience
Photo Provided by Megan Catalibe Photography
Marcus has always been a performer in addition to a creator. The microphone is his instrument of choice. In his teen years and early adulthood, he often enjoyed going to Karaoke Nights with our friends. His specialty songs included Harry Belefonte’s “Banana Boat Song” and The Blues Brothers, “Soul Man,” among others. And, as you may know, in 2015 with the book launch of Black Day: The Monster Rock Band, there was the release of his music video featuring the song, “We are the Band (Black Day!).”
Brushfield Spots – The Coolest Genetic Trait Ever
I was one of those moms that stared at her baby constantly. I marveled at him. Luckily, my friends also enjoyed this pastime. Maybe because we were broke. Staring at Marcus staring at the ceiling fan, or lying next to him and staring at the ceiling fan, was a hobby we could all afford.
Also because he was beautiful, he smiled readily, and his eyes sparkled.
I watched his deep blue eyes, expecting them to change into brown, or hazel, or in-between-green-and-something-else, like mine.
After he turned a year old, I celebrated the knowledge: Those blue eyes are here to stay!
A few months later he was at an evaluation of some sort with several clinical and scary looking people and one of them used the words: “Brushfield spots.”
A Day in the Life of a Husker Football Fan
Marcus and I had a good day in Lincoln yesterday. Cold, but good.
I am a Husker Football fan. Marcus incrementally eased into fandom. Like most people, it started with the food and social aspect. He’d go to a live game with me once in a while, and take in the show of it. Several years back, the stadium added firework blasts after each score, that, on top of a brutal sunburn on the back of his neck, was the final straw. So he decreed, “I like the bar, instead.”
Memorial Stadium
This last week Marcus said, “Alright, fine. I’ll go to the stadium.” Then, the weather “turned.” Fortunately, we could see it coming but, the forecast said cold (30 F) and mist or even…snow?!?! Ugh!
My dilemma: Finally, Marcus has agreed to
Sunday in October
Sunday starts with Coffee
Sunday’s are what Marcus calls a “work club day.” He and I are the “work club.”