Following the “rules of blog” – I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
The truth is
people born with 47 chromosomes have been locked away
left alone and died alone
in voids of confusion and loneliness
throughout history and throughout the world
The truth is
Some still do
do not preclude a human from learning
from reaching for more
Science can see this trisomy
before a mother
feels her child developing
Science cannot see possibility
Science cannot tell the future
Neither can you
Neither can I
The truth is I need help
to facilitate my son’s reach
toward his potential
The truth is he has dreams for his future
do you have dreams, too?
The truth is he is no less human
no less worthy of love and respect
and a chance
He is no less than any other human
The truth is the future sometimes scares me
The truth is I also
in that antiseptic room
your tiny chest opened
once considered a miracle
in my wallet
For enough life
whatever we get
should be enough
Is that possible?
all we get is
a few precious minutes
here and there
make minutes matter
beautiful beating heart
I keep watching
keep watching you
and your heart…
So, in April I tend to go to the hard moments that came from the April’s before, including handing my sweet baby over to heart surgery all those years ago. We had a long reprieve from even appointments, but now they are back into the mix and then I obsess…maybe even without cause.
I was one of those moms that stared at her baby constantly. I marveled at him. Luckily, my friends also enjoyed this pastime. Maybe because we were broke. Staring at Marcus staring at the ceiling fan, or lying next to him and staring at the ceiling fan, was a hobby we could all afford.
Also because he was beautiful, he smiled readily, and his eyes sparkled.
I watched his deep blue eyes, expecting them to change into brown, or hazel, or in-between-green-and-something-else, like mine.
After he turned a year old, I celebrated the knowledge: Those blue eyes are here to stay!
A few months later he was at an evaluation of some sort with several clinical and scary looking people and one of them used the words: “Brushfield spots.”
From the Many Awesome Videos Shared on or around World Down Syndrome Day 2018 (WDSD18) –
Here are five (plus one) you should check out for sure!
Dear Future Mom
CoorDown has done it again with another original video. These are the folks who brought the world “Dear Future Mom” four years ago. In fact, let’s start with that one because, yeah, you’ll see:
I will tell you, though, Marcus is not a fan. He feels that the sad music (minor chords, ya know) do not accurately portray the message of the film.
Lea Goes to School
This Year’s CoorDown message is: #IncludeUsFromTheStart. A completely different storytelling methodology with story-book animation. I love it, too! Check it out:
I have more to say on this (Oh – Look surprised why don’t you?) But today, let’s