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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Singing, Meet Your New Road

It will be a busy start to the year with trips to Dallas and Houston, Phoenix and Tampa, New Orleans and New York City. Most for business, one for fun and family. Plus a few more maybe trips and locations, and all within the first 6 months.

What will all that running accomplish? What I’m striving for these trips is connections: more, stronger, and better.

Gift from a Stranger

Marcus at the most recent airport

Marcus and I recently came home from a combo trip, work and fun. The work portion combined both print-work and advocacy-work. We came out with new friends, inspiration, motivation, a long but hopeful to-do list, heavy assignments, and high expectations.

Also, on this trip, Marcus and I were the recipients of a random act of kindness. A stranger paid our food

Dear 2020, I see you coming

Happy Very Nearly New Year!

It’s that time of year when we look at the last year’s goals and ambitions, see how we stacked up, and (best part) make new (or renew) goals for the New Year.

My report card didn’t come in to so hot (based on my ambitions) for 2019. Even the parts that can be checked off as done, weren’t necessarily won.

Yet, onward! New spreadsheets full of ambitions, new books to read and things to learn, new words to write, and new adventures await!

In 2014 I learned the “Word of the Year” concept. I like it. It’s a challenge to choose a guiding principal and pinpoint it down to one word for the year.

More

Every year, every week, every day, really, I want to learn more, live more, do more…Be. More. Can

Measuring the Year

“Five hundred twenty-five thousand six hundred minutes
How do you measure, measure a year?”

 

I measure in lessons, in losses, in failures, in wins, and of course, in words. Each of these are compiled in spreadsheets (as I force the abstract into quantifiable cells) and many bits shared right here, under the public eye. Hmm, the public forum. For those of you following along, you may recall the first post of 2019 began:

Oh. My. God. This effing January.

So, there’s that.

I didn’t “triumph” over 2019, like my public facing plan. And for 2020, I’m still working on the strategies, the markers, and “the word.” Before we get into that, let’s take a peek of some of the most well received moments in the blog this year.

2019

Can Time Stand Still

I wish had a time machine.

One where I could stop time for just myself. I could work. I could create. I could sleep. And then, when I step back into the spinning world, I would spend new time with those I care for in a most enjoyable and leisurely way. Oh, I could give so much more!

In the machine I could learn! I could learn between the minutes to be better prepared for the next. To improve. To grow.

It’s the biggest cheat I ever wished for.

Of course, I would greedily want more; I’d next take people I love along into the magic portal where time couldn’t touch us.

We’d create stories, music, and other art. We’d travel to spots of inspiration. We’d play. We’d

Events

Tweets