Slide thumbnail
Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

A Healing Balm for the Down Syndrome Community and Allies

The Global Down Syndrome Foundation each year hosts a fabulous event called Be Beautiful, Be Yourself. At this year’s event on November 14th,  we’re going to celebrate. We’re going to cry. We’re going to push forward. I’m the mother of an adult with Down syndrome.  There’s so much that I want to tell you, I hardly know where to begin…

Shall I start with 2020 and Covid? Of how scared I am…I fear the possibility that my very breath can bring in a virus that kills people with Down syndrome at 10x the rate of the typical population? As I work to keep our basic necessities available, how should I best balance productivity and safety? I recognize this struggle affects each family and loved one who is vulnerable at this time.

Do I

The Most Generous Holiday

Halloween

It’s no surprise to me how many people we’ve met that tell us that Halloween is their  favorite holiday, and/or the favorite of a person they love with Down syndrome.

There’s a lot of theatrics to Halloween. You can be whatever you want and people are like…cool!

In my experience, Halloween is the most generous of holidays. Although it can be secular in who may choose to participate, it’s not secular on who is welcomed and included. In fact, everyone is included no matter how you look or speak. Anyone who

Marcus Isn’t Selling Down Syndrome

He’s Selling a Halloween Book

44649402Marcus is an author who has Down syndrome. He is a self-proclaimed (and proven) storyteller. As authors, we are taught; “People don’t buy books, they buy stories,” and sometimes these stories include the story of the author. Plus, in social networking and marketing we are taught, people don’t “like” an organization/website/whatever-you’re-selling, they “like” a community. People “like” being a part of something. Consequently authors, especially new authors, have to start with who they know.

Our Community

Our community is full of people who, as Marcus says, have a “face like mine.” However, Marcus’ book, Black Day: The Monster Rock Band has, “nothing to do with Down syndrome.” (His point for an interview with Kari Wagner-Peck

What I’m smiling at these days

Ok, first things first, #1 this video!

We are Goo Goo Dolls fans and have been since, oh…before some of you were born. (Well, probably not many under 21 reading this, but possible!) ANYway, Marcus and I have been singing along (and karaoke-ing too) to many a Goo Goo Dolls song over the years.  I even wrapped up the Goo Goo Dolls song “Iris” into a starter review of a few Broadway shows a few years ago. Marcus singing “Iris” is something that will never not rip my heart out. From when he was 10 years old and still today.

So when I saw the Fan club was making a video to the new song “Fearless“ we said – We’ll play! Then they assigned out the sections and Marcus’ received

Events

Tweets

Go to Top