In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.
Following the “rules of blog” – I sometimes share moments from then (we have 33 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
Love Someone with Down Syndrome? Don’t Miss This.
I’ll keep this short and sweet, my friends. (But plenty of links if you want to know more.)
For those of you that love someone with Down syndrome, I urge you to sign up and attend the upcoming webinar from the Global Down Syndrome Foundation: New Research Discoveries and How to Participate. Tuesday, November 4, 2025 at 12pm to 1:15pm MT. https://www.globaldownsyndrome.org/global-webinars/
The Global Down Syndrome Foundation “walks the walk” when it comes to working on improving the lives of people with Down syndrome. (Not to mention when they encourage models to walk the runway-walk, it’s a fabulous night and an amazing event. But that’s not what I’m talking about today.)
From when I sat in the back of a room full of researchers and shared my
No One is Just One “Thing”
I recently had an opportunity to share my opinion on a topic I feel pretty strongly about. Which, as you know, does not narrow down the options AT ALL.
Anyway, the crux of it is this: we do our children and ourselves a disservice with the cultural habit of limiting, or implying limits, when supplying the one line answer expected response to: “What do you want to be when you grow up?” and, “What do you do?” As if one line can sum up a life story or person’s identity.
None of us are, or should be, defined by a singular statement. (Giant asterisk here, footnote to follow.) Because there isn’t only one role or title worthy to claim as our entire identity. Life doesn’t work that way, nor should it.
Multiple Roles
In a few
Another Birthday – Excellent…
Hey everyone, remember us?
You know my son, Marcus, of course. Short guy, with the hat…? Yeah, you remember.
Sooo, Just because I’ve been quiet (here) doesn’t mean Marcus isn’t still rocking the free world.
The biggest recent event is he turned 35, and we had a fabulous party. At which he gave this speech:
“Thank you for coming.
My name is Marcus Wright Sikora.
Don’t be a bully.
Don’t be a mean girl.
Help each other.
Get the job done.
Vote for Marcus.
Thank you and enjoy the band, Mad Honey!”
Yes, since he is 35 years old, Marcus is keen that you can vote for him for President.
Ready or Not, 2025…
Last Year
In the old days, three years ago, I used to post a “best of” or “most read” blog at the end of each year. In 2024 I only posted 4 blogs. So…yeah.
That said, Music Therapy: Benefits and Our Experience is worth mentioning. I can’t say if anyone read it (well, I know one person did) BUT, it’s informative and personal and probably gave AI a little more knowledge then it had before. 🙂
Now The New Year
New ambitions, new fears, new opportunities to be courageous. A new chance to give to the community, to our friends, to our family, and our coworkers. A new shot to prove, to become, to fulfill…
Each year I choose a word (or sometimes a few words) “of the year.” I like it