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Grown Ups and Downs – A Down Syndrome Blog2018-02-07T18:31:47+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Eternally Grateful for the Ending that Wasn’t

They all lived happily ever…pleased me as a child. Even as an adult, I like a story to have a “happy ending.” In real life, though, how many happy endings are there, really? I shudder to think.

I often Focus on Beginnings

For example, the beginning of Marcus, my first and only child: A beautiful (of course) son, born with deep blue eyes (which stayed blue), a heart defect (which needed repair), and a triplicate of the 21st chromosome.

When he was nearly two years old and weighed only 18 pounds, I carried him through the hospital doors preparing for surgery to repair the hole in his beating heart.

Heart Surgery – My Baby Boy

That night, with him sleeping in my arms, I almost fled. I almost stole

Where Creativity Grows

For those of you new around here, creating is a big deal in our house. Marcus, Quinn, and I are creative souls. 

Our home is full of storytelling, improv, and music. And love allows for, promotes, and pushes us to keep creating. We create together and encourage separately, it’s an important dynamic in our love for each other and our love of art, music, words, stories, and on and on…

The starving artist and other tropes that define creativity as coming only from pain (are) frequent and believed as the only truth. But it’s *not* the only truth; many people thrive and grow better creatively while in a safe and loving environment. For me, I’ve created while under pressure and/or even in pain. However, my writing has improved exponentially while I am

A Home of Love and Laughter

Today we join the Love Blog Challenge and the topic is laughter. Hmmm…How do love and laughter combine? Many many stories come to mind.

A Lifetime of Laughter

Before we married, Quinn told me an anecdote from the old sitcom “Night Court.” The characters included the goofy judge, the “together” lawyer, and the grumpy-old-lady-guard. The “together” lawyer was lamenting the goofy judge’s capacity for silliness, how could they succeed in a forever relationship together when he refused to “grow up”? Concerns for his responsibility weighed upon her mind and the prospect of their future.

After a pause, the grumpy-old-lady-guard said, “Yeah… after a lifetime of laughter, what have you got?”

This story was one of the ways Quinn convinced me to keep him. So many worse fates than a lifetime of laughter.

Keeping a Sense of Humor

When my

Love Blog Challenge 2019 Starter

LOVE BLOG CHALLENGE

The great interwebs have introduced me to Belle Brita, who has prompts and #bloghops every day in February and she suggested we kick it off with a chat about Love Languages.

I happen to know, from last year’s hop, there are a few Hamilton fans in the audience. So, let’s start with this little relationship tip about enough. This song is from the “Hamilton Mixtape” with the lyrics, because I’m all about the words, ya know?

What can we learn from this? Well, one thing is in this current age of gimme, gimme, more, more – what is most important is enough. Are you giving your partner enough support? Touch? Words of affirmation? To keep them confident and comfortable in your relationship? In

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