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Grown Ups and Downs – A Down Syndrome Blog2018-02-07T18:31:47-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

I used to think that…

Wedding Day.
When I was thin.
I got over it.

Today I’m responding to the prompt: I used to think (but I don’t anymore).

Here are five that came to mind.

Walking the Thin Line:

I used to think it would be better for me to be dead than have any fat on my body.

Since then,…bad news and good news. 

Oh boy, do I have fat on my bones.

But glad to be alive. 🙂 

 

Learning the Hard Way:

I used to think our legal system had some semblance of/or consideration of/ “common sense,” also that the “little guy “ had some systemic protection against endless allegations that are merely for the sake of harassment. I don’t anymore.

 About

A Home of Love and Laughter

A Lifetime of Laughter

Before we married, Quinn told me an anecdote from the old sitcom “Night Court.” The characters included the goofy judge, the “together” lawyer, and the grumpy-old-lady-guard. The “together” lawyer was lamenting the goofy judge’s capacity for silliness, how could they succeed in a forever relationship together when he refused to “grow up”? Concerns for his responsibility weighed upon her mind and the prospect of their future.

After a pause, the grumpy-old-lady-guard said, “Yeah… after a lifetime of laughter, what have you got?”

This story was one of the ways Quinn convinced me to keep him. So many worse fates than a lifetime of laughter.

Keeping a Sense of Humor

When my mother was diagnosed with Alzheimer’s she said, “So…I’ve got old-timers?”

“Yup,” I said.

“Well, at least I’ve still got my sense of

A Life Uncontained (And baseball memories with Video)

I’m reminiscing today because later this week I plan to join some business colleagues at a White Sox baseball game, it got me thinking about our few, yet powerful, baseball experiences. Like the time Three years ago Marcus threw the opening pitch at our local baseball field. I think he nailed it. It was a fun game with other DSA families. I also got “locked out” of Facebook that day for sharing too many photos, I guess…? I don’t know, actually, but here’s the video Facebook made anyway

Day In the Life – and What a Day!

Resharing this post, a little #TBT, WOW! such fun to look back at the building of Black Day, the auditioning for the Global events, this was a pretty “normal” day in those days…A_Day_in_the_Life_Stacked_4cI love this #LifeWithDs concept, the Day in the Life idea. I love that it gives folks a chance to see the real day-to-day, the normalization of what life is like for our families. Sooooo, it may be poor form to share this day, April 8th, 2015, but as I opened my computer, I knew…this is the day:

Today we got up just as the sun did.

In fact,

Events

DSDN Rockin’ Mom Retreat

September 6 - September 7

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