Following the “rules of blog” – I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
Resharing this post, a little #TBT, WOW! such fun to look back at the building of Black Day, the auditioning for the Global events, this was a pretty “normal” day in those days…I love this #LifeWithDs concept, the Day in the Life idea. I love that it gives folks a chance to see the real day-to-day, the normalization of what life is like for our families. Sooooo, it may be poor form to share this day, April 8th, 2015, but as I opened my computer, I knew…this is the day:
Today we got up just as the sun did.
About seven years ago, the first warning sign that my mother wasn’t herself was her inclination to comply. She would ask permission (it seemed) for small, simple things. She’d look to her husband, “is this OK?”
It pricked my senses. What was happening?
I didn’t see in him as desiring to control her. They had already been through her first round of cancer together. He took on his new role and became caregiver. It didn’t make sense.
No. This was something else, this was the first symptom of Alzheimer’s settling in. Dementia has many starting points, and in her case many strikes to set it up, the change came almost immediately after radiation treatments. She was confused and now constantly needed his (or someone’s) ok, she needed reassurances. This was not the woman I
The bright blue sky in this photo projects the endless pallet of possibility. The balloon displays the colors of diversity, happiness, hopefulness, cooperation, and potential; it brightens the sky with hope.
With a basket, it can carry us to an endless view of the world below, both vast yet suddenly insignificant. When the breezes push, we may hold hands and fascinate over the landscape, challenge our ideas of where the horizon stops, and float over minutia to embrace the vast.
The air we once took for granted because we couldn’t see, hold, or keep it, lifts us to a new perspective. And we cherish it.
I see in this photo the emotion of parenthood.
A giant everyday collision between the vast and minute, the possible and present.
I proudly share and emphasize the achievements of people with Down syndrome.
I intentionally spotlight success stories.
All the while keeping in mind a spotlight, in some ways, emphasizes the presence of only a few on the stage.
I forever marvel at how much more our world has to gain if we just gave everyone a chance at a solid educational foundation and appropriate health care.
How much further along would our planet be *right now* if “the few” didn’t cut off these opportunities for the many?
The next great scientist, artist, peace-maker, leader, and educator could be among the masses who are in wait without a proper school or nourishment.
I mean it!
For example, at this time last year Amy and the Orphans was on the Broadway stage. These