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Grown Ups and Downs – A Down Syndrome Blog 2017-11-04T16:03:26+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

How Alike Do We Have to Be?

In about 5th grade I thought, “I hope when I have a daughter she’s not too pretty. Pretty girls…they don’t understand anything.”

In fact, when I was pregnant, of all the things I feared, I feared having a daughter.

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I had one big birthday party when I was 6. It was a whopper, my whole grade was there. We ran across the lawn with raw eggs on spoons. There was a huge array snacks and more games. A long table made of planks and concrete blocks, perfect for 6 year olds to fit around. The radio was on while we had cake and the DJ dedicated, “Puff the Magic Dragon” to me at just the right time. It was nuts.

The next birthday party I had was at 16. It was also great.

In between, I

Marcus Sikora Global’s 2017 Ambassador Video

Marcus’ Big Night

at the Be Beautiful, Be Yourself 

included a tribute video.

To start with, Marcus gave a speech in front of 1200+ people under the spotlights. (That speech is here). He spoke to journalists and faced the flashing cameras on the runway. (One of my favorites is here). And he ROCKED the runway. Marcus and the Stars!

Like most successful, public events, it came after a lot of practice. He practiced his speech. He practiced his model “moves.” It also helps how many big events he has been a part of this year, TV interviews, speaking at the UN, and “gigs” teaching kids and grown-ups in classrooms and libraries across the country.  This one was, and we knew would be, different in a few big ways. The most critical is the sheer energy and emotion

Marcus’ Speech at the Be Beautiful Be Yourself Event (Video)

SO, it’s been a week now.

One week since Mr. Marcus Sikora did his second runway walk at the Be Beautiful, Be Yourself fashion show. I can tell you now that at the event last year, Marcus told me that he wanted to give his own speech at this event. That it was not my idea. I even, gently, asked him a few times, “Are you sure?”

His answer, “Yes.”

So, he did.

Marcus in a top hat speaking at the podium of the Global Down Syndrome Event

We shared the video of his speech at our local follow-up party here in Omaha on Friday. Every time it played I felt the blood flood to my face, so nervous for every line, just like the night of the event.

Sooo anxious for everyone to be patient

Marcus and the Stars

Are you effing kidding me?! I want to tell you all about everything, but…is  too much! Pictures are worth a thousand words, right? So let’s start with this video:


Alright, yeah, Jamie Foxx was cool.

Then there was Madeline Stuart, her Mum, and entourage, I was a bit of a fan-girl, there. I tried to look calm, but I’m not gonna lie – the fact that she walked alongside Marcus at the finale’ just made my heart EXPLODE.

Dudes!

So many of our friends and family came to support the event and they all looked Fabulous! They were as glamourous as any other VIP. (Totally VIPS!)

So many friends

Events

School Event

April 6, 2018 @ 9:30 am - 10:30 am

School Event

April 17, 2018 @ 8:00 am - 10:00 am

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