Following the “rules of blog” – I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
Marcus dropped one of his wisdom bombs on me while we were at our favorite coffee shop. We’re regulars at one particular Scooters where they are nice to us. The general public, on occasion, puts me on edge. You see, I’m a bit paranoid and particularly attentive to how folks look at and react to us because Marcus, my adult son, has Down syndrome, and the patrons and employees at this Scooters tend to acknowledge Marcus but not bristle, are nice but not patronizing, a surprisingly tricky balance for some.
That month a website called The Road We’ve Shared was preparing to “spotlight” Marcus. So while we sipped our hot drinks, I asked him a few questions, finding out some of his favorite things to include in the note.
I learned that Marcus’ favorite Muppet is Walter (the new guy).
Wedding days are full of promise.
Promises made and promises kept.
This picture is from Quinn and my wedding day and it speaks of promise like no other.
Pretty much the universal favorite pic from our wedding day. Quinn and Marcus.
Sure, there were promises, vows – you know, between Quinn and I. However, those are the obvious ones, the “givens” of the day. The look between these two, it speaks to our life together, to comitment, to belief, to trust – this, my friends, shows a lifetime of promise.
In the anniversary of us, I mention,
I don’t think there has ever been a person able to see Marcus for who he truly is, better and more honestly, than Quinn.
You see it, too, right?
Another wedding song we had (I had lots)
“If you could cure…”
I stopped him, “That is not a fair question.”
The scientist raised his eyebrows.
How can you speak of “cure” when the issue in discussion is in every cell of his body?
What does it feel like to have 47 chromosomes? I wonder. Does it feel different than 46?
Every cell in our body contains our chromosomal makeup. Cells constantly regenerate, each set (or triplicate) of chromosomes generating and regenerating as well. Sometimes cells in the typical population, triplicate the 21st chromosome, here and there. But it’s scant – other cells adjust and readjust, and the moment passes. Do we even notice? Do we feel a shift? I listen and read of the science, I’m fascinated and often baffled.
The thing is, the more I’ve learned, the less I can imagine
Currently and As Always…
loving, craving, demanding, questioning, worrying
Loving. From the moment I met him, and each day since, I marvel at the miracle that is Marcus. At times I muse at how he doesn’t look like me, or much like the child, I thought I would have created. No. He looks just like him. He does in so many ways act like the child I thought I’d have, he’s dramatic and funny and creative. And more than anything, he is loving. He is loving, forgiving, and tender. Everything begins and ends with loving.
Then there’s the craving. Craving means, “A powerful desire.” Yes, I crave peace of mind. I crave safety for my son and everyone who