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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Once in August – A Story, A Poem-ish, A Reflection, and Now

A Story

Once in August…50 years ago

A baby was born to very young parents who couldn’t afford to bring her home. The hospital required ten dollars. Although there wasn’t ten dollars in the account, the clerk suggested the father write a check – he did and they bundled the baby home.

There wasn’t a crib yet, but the baby was very tiny (as newborns tend to be) so a dresser drawer was just snug enough.

Probably about 46 years ago.

Once in August…45 years ago

The little girl went to her first day of school. This was also the day her mother moved out and somewhere in this time, she began keeping memories.

However, it’s not a viable resource,

Imagining

Can you imagine?

Can you imagine a live action, or maybe a stage scene, based on the Alice and Wonderland characters Mad Hatter, played by Stephen Fry, the March Hare played by Lin Manual Miranda, and the door mouse is Patton Oswald…? Marcus imagined this and I would love to see it!

Human and Storytelling


I believe that

Marcus, Aristotle, and Douglas Adams Advice

In my young adulthood, I frequently said, “This is no time to panic…” Often at random moments, to no one in particular, mostly at work. 

After reading the book series, The Hitchhiker’s Guide to the Galaxy, then seeing the classic BBC TV of the same name, the simpler phrase “Don’t panic” including a cheeky smirk and a deep sigh is a common refrain in my household. 

The first time I recall Marcus purposefully using the phrase “Don’t panic” was a memorable audition night in Denver seven or so years ago.  He was right. 

In 2017, disability advocate Meriah Nichols requested an interview with Marcus for her spotlight “Voices from the Disability Community” series. We made this short video in response. I’m reflecting  about

How Much Love, Worry, and Wishes

I admit that when Marcus was a child, the future scared me. A whole lot. In fact, I used to cry on his birthday more out of fear than joy. Seems silly now, it’s just – look at that kid! He was so full of life and I had the devil whispering on my shoulder…

Finally, I woke up and noticed the futility of all those years of asking, “What are you going to do when he grows up?”

Not to say that I don’t still hold the Gold Medal Worrier Title. I do. How much do I worry? It’s a tightrope walk, push and fuel enough to fill a black hole, but contained enough to

Events

Tweets

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