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Grown Ups and Downs – A Down Syndrome Blog2023-10-15T22:20:06-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 33 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Music Therapy: Benefits and Our Experience

Photo Provided by Megan Catalibe Photography

Marcus has always been a performer in addition to a creator. The microphone is his instrument of choice. In his teen years and early adulthood, he often enjoyed going to Karaoke Nights with our friends. His specialty songs included Harry Belefonte’s “Banana Boat Song” and The Blues Brothers, “Soul Man,” among others. And, as you may know, in 2015 with the book launch of Black Day: The Monster Rock Band, there was the release of his music video featuring the song, “We are the Band (Black Day!).”

Out with the Old, In with the Love

Ok Kids, January/Februaries have been rough on me the last, say…several years, with huge loss and hardships.

This year, I have had some stupid, rough days and am also trying to recover from influenza. Which kicked me in the a**.

Plus, I’m just going to get this off my chest, it was 5 years ago today my mother died. Her end-of-life was…tough, pretty bad actually, and I still haven’t really recovered.

So, obviously, I’m having a “stress test” today and writing/posting much of this from a waiting room. You know, as you do.

Body Vs Brain

My body has focused on the negative, but to be honest, there’s plenty of not-negative to acknowledge. 

In fact, the year-to-date  highlight was a great, whirlwind, birthday

Here we Go – 2024!

Happy New Year!

I’m starting 2024 with a bit of a free-write update for our friends who are keeping track.

Back in 2013

Marcus and Mardra Sikora smiling for selfie.It was upon the advice of the internet that I named this website mardrasikora.com, however, the overwhelming reason for most visits, is to check out the life, day-to-day and otherwise of Marcus Sikora. (My adult son with Down syndrome.)

This Year’s Holiday

So, let’s talk about Marcus at the family and friends over the holidays. He’s a delight, first off. Christmas is  magical in his presence because that is what he sees and reflects ten-fold. He’s an absolute blessing.

One of Marcus’s cousins, for reasons unknown to me (if there’s even a reason), wholeheartedly embraces Marcus for

Some of the Marcus Equation

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests.

IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test when he was maybe three or four years old. He communicated mostly with action/expression and sign language. But not that day, well I take it back...he was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or would not.

At one point, the psychiatrist held before Marcus a doll with its head off, laying in her hand next to its body. She held the decapitated doll and asked, “What’s wrong with this?”

Oh! Let me count the ways! I thought. “What are you trying to achieve here?” I asked.

“It’s a standard question,”

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