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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

The Most Generous Holiday

Halloween

It’s no surprise to me how many people we’ve met that tell us that Halloween is their  favorite holiday, and/or the favorite of a person they love with Down syndrome.

There’s a lot of theatrics to Halloween. You can be whatever you want and people are like…cool!

In my experience, Halloween is the most generous of holidays. Although it can be secular in who may choose to participate, it’s not secular on who is welcomed and included. In fact, everyone is included no matter how you look or speak. Anyone who

Marcus Isn’t Selling Down Syndrome

He’s Selling a Halloween Book

44649402Marcus is an author who has Down syndrome. He is a self-proclaimed (and proven) storyteller. As authors, we are taught; “People don’t buy books, they buy stories,” and sometimes these stories include the story of the author. Plus, in social networking and marketing we are taught, people don’t “like” an organization/website/whatever-you’re-selling, they “like” a community. People “like” being a part of something. Consequently authors, especially new authors, have to start with who they know.

Our Community

Our community is full of people who, as Marcus says, have a “face like mine.” However, Marcus’ book, Black Day: The Monster Rock Band has, “nothing to do with Down syndrome.” (His point for an interview with Kari Wagner-Peck

What I’m smiling at these days

Ok, first things first, #1 this video!

We are Goo Goo Dolls fans and have been since, oh…before some of you were born. (Well, probably not many under 21 reading this, but possible!) ANYway, Marcus and I have been singing along (and karaoke-ing too) to many a Goo Goo Dolls song over the years.  I even wrapped up the Goo Goo Dolls song “Iris” into a starter review of a few Broadway shows a few years ago. Marcus singing “Iris” is something that will never not rip my heart out. From when he was 10 years old and still today.

So when I saw the Fan club was making a video to the new song “Fearless“ we said – We’ll play! Then they assigned out the sections and Marcus’ received

The Journey to Success

“Success is a journey, not a destination.”

This was somehow an inspiring sentiment in my teen years. Back then I wore my perseverant nature as a badge of honor and believed  (vehemently) it would be the key to my success. But then…adulthood.

Staying alive, keeping other human(s) alive, and the simple act of breathing took a lot more effort than I expected.

By the  age of, let’s say 43, this quote and “success being a journey” concept pricked at my soul like needles. I didn’t *want* it to be a journey, I wanted to arrive! And with each new station-stop on the journey, I felt “success” further away instead of nearer to my grasp.

Still do.

Success feels somewhere

Events

Tweets

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