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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Covid-19 and Down Syndrome: Starter Info

Who knows?

I think it’s natural, as a parent, to try to – to want to – protect. Therefore, sometimes we don’t address issues, important stuff, that needs to be faced together, because we don’t want to share the burden of knowledge. 

That said, If there’s anything I’ve learned as Marcus’ mom it’s this: never assume he doesn’t know or won’t understand. 

Early, often, and honest explanations are important to Marcus’ ability to cope with difficult situations. This is true for…maybe everyone, right? 

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About 4 weeks ago I decided it was time to talk about the Coronavirus. There had been plenty of talk around Marcus, but to my knowledge, not much talking

Checking In

I’ve been sick. Not THE sick, but sick.

When I first started coughing, I went to a “quickie mart” in the mall across from the hotel and bought chips, chocolate, water, cough drops, and a thermometer. The man at the register asked, “Are you panic buying?” I didn’t quite understand him at first, so I replied with a little nervous laugh. He went on, “Everyone is panic buying…they have bought all of the sanitizer and alcohol.” Finally, I understood him. “Ah,” I said, flustered but trying to look cool, “As long as there’s still whisky, we’ll be alright.” When I played it back in my mind I answered, “Yes, I always buy chips when I panic.” Which is also true.

Thing was, I knew I couldn’t/wouldn’t get on an airplane if I had a fever. Not now.

Fortunately, no fever. Just a brutal,

Inspiration and Art-Work

After several posts on or relating to love, we’re wrapping up with inspiration. 

 

Love and Inspiration

Inspiration is a notion tossed around like it’s a miracle, a blessing from the muse. A flash of light, an idea from the invisible. 

It’s true; inspiration is a blessed apparition which appears when you’re open and looking. Then, once the beautiful notion comes to you, you’ve got to hunker down and do the work. Inspiration may give you a nudge, but nothing gets completed without doing the work. 

It’s a lot like love that way. After the initial spark, what are you going to do to keep going? Where’s the follow through? That comes from you. 

I’ve come to believe that love: giving, sharing, and celebrating

Creating Begins with What If

Creation Begins with “What If?”

The thing about What if is that it’s the beginning of…everything. Every successful entrepreneur asks, What if? Every inventor, every teacher, and every person who creates asks, what if?

Then there are the people who nurture people, often (but not limited to) those people who create people, parents we call them, so many what ifs….

What ifs that keep you up at night. What ifs that you celebrate. What ifs you didn’t even think of…

From before our children are even born until forever.

In advocacy we encourage others to think of What if?

Change Begins with “What If?”

What if every room was accessible? What if we provided a complete and approproate education to every student, regardless of privilege and perception?  What if everyone had a place on the platform?

What if we listened?

Oh

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