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Grown Ups and Downs – A Down Syndrome Blog2018-02-07T18:31:47+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Our Living History

us10 years ago, I was the customer service and marketing manager in the family print shop and Quinn and I celebrated our 10-year wedding anniversary with a delightful party at the Joslyn Art Museum and I wore a fabulous dress. I celebrated a breakthrough in my health and was in the few “perfect weight” years of my life. (Well, to be honest, I had one singular year of perfectly healthy weight. Ah well…but this post isn’t about my body or body image, this post is about what a whirlwind time is and can be and where we’ve come from and…)

Anyway! December 2007 to 2010 were important yet seemingly invisible years of work and

Dear 2019, I Will

So, that time of year, eh? Reflection and looking forward. The last several years I’ve embraced choosing a word of the year theme.

To recap:

In 2015 I said, I want it all. (Also, I said Publish) In 2016 I said, Purpose. In 2017 I said, Patience. In 2018, I said: Produce.

Some years I’ve stayed true and been more successful with my theme than others. In 2018 we did produce, not as prolifically or as completely as I had intended last December, but I tend to shoot rather high. 🙂  We certainly didn’t slouch and we learned a lot, again. (More on that here, if you care to look around at “People’s Choice – Or What We Learned This Year“)

So…

 

 

Dear 2019,

I enter the New Year with a willingness to learn, ambitious goals, and an acceptance

Legacy of Love

Immortality

One day, several years ago, my father asked me, “Why do you want to be a writer?”

“Immortality” I answered.

I think this is common for artists. Since accepting the challenge to write and share about Legacy, I’ve seen it sprinkled in many songs and art references. Pretty much the entire musical of Hamilton is obsessed with the theme of legacy.

Earlier this year the lead singer of The Cranberries, Dolores O’Riordan, died at 46. Forty-Six. Too young. She touched many lives in her short life and her work will live on. This song, “When You’re Gone”  begins with the line, “Hold on to love, that is what I do…”

Me too.

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How Will History View Us

People’s Choice – Or What We Learned This Year

Marcus holding the US flag while in Glasgow during the World Down Syndrome Congress

It’s that time of year! We reflect and try to comprehend how another year has flashed by so quickly. This one was a doozy, with high highs and low lows. Taking a look at which blogs this year were, well, actually read, demonstrated the variety of themes we learned and shared in 2018.

From Iceland

Of course, the most important lesson this year came from Marcus’ actions and his general living wisdom. We were lucky to make an international appearance this year. Marcus shared Black Day: The Monster Rock Band at the World Down Syndrome Congress. We met cool people from around the world, the whole experience was, as you may imagine, amazing. However, before all that amazing happened,

Events

Tweets