Following the “rules of blog” – I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
The Most Important Lesson from our Trip Happened in Iceland.
Can you imagine what it’s like to have your own child’s value, as a human being, debated? A world where you regularly encounter the opinion of scientists and doctors who are literally working to eliminate the entire segment of humanity of which your child is a part…and it all happens without public outrage. In fact, it is happening throughout entire cultures.
I frequently listen to the band Of Monsters and Men when I am writing. I love their lyric videos and their melodies drive emotion. Of Monsters and Men happen to be from Iceland.
Iceland and Down Syndrome
Iceland has become a trigger word in the Down syndrome community. Last August, CBS News “On Assignment” reported the birth rates of people with Down syndrome are diminishing to
Highlights from our travel journal:
As many good vacations do, this one began on a Friday morning at what Marcus calls “Dark early.”
“I hate dark early!” he said. Don’t we all? Getting up at 4:00 am (after getting settled at about midnight, everything sneaks up on you, you know?) To hurry up and wait and hurry up and wait. Short flight #1, short layover, on to flight number two – Yea! Marcus decided Mimosa was the way to fly and I agreed. Cheers!
Marcus holding a mimosa on the 2nd plane. Cheers!
Only two more planes to go…
When we reached our layover in Iceland, Marcus taught me just how to deal with…humans. What Marcus Taught me in Iceland.
When we arrived in Edinburgh Saturday morning. We rested, we set up
Marcus holding the US flag while in Glasgow during the World Down Syndrome Congress
We have been “quiet” because we’ve been busy, in Scotland at the World Down Syndrome Congress, where we met many new friends from around the world.
Where Marcus showed Black Day: The Monster Rock Band in this international forum.
— Mardra Sikora (@MardraSikora) July 27, 2018
Where I listened to doctors and researchers and became inspired and hopeful.
There’s so much to tell you! I am breaking it up in chunks and hope I can get my homework done, or at least most of it, before I return to the “day job”
What does a community of CAN look like? To me, it looks like encouraging people to contribute to their community with their unique talents and skill sets