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Grown Ups and Downs – A Down Syndrome Blog2018-02-07T18:31:47+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Back to School (Of Rock!)

Rocking Influences

Marcus and Alice Cooper

Marcus has met a few celebrities in his time, as you’ve seen if you hang about a bit. Some of the artists have been true inspirations to Marcus’ work.

The first was Alice Cooper a few years ago, obviously a huge influence on Black Day: The Monster Rock Band. (You can follow up on that here: “Worlds Collide” )

Another Influencer

This last Friday night we attended an Omaha Performing Arts event that featured Brian D‚’Arcy James.  You may know him from films, we know his work from Broadway. We’ve seen him in two shows in NYC, first in Shrek the Musical and next in Something Rotten!  (We also met him once on the streets of NY once while he was on his way to work, as

Marcus and Harry Potter Theatre Day

“So, anyway, about Harry Potter…”

When Marcus wants to veer the conversation, his go-to sequitur is “So, anyway…”

After we saw Harry Potter and the Cursed Child (Parts One and Two) we discussed and dissected the show during the break, at dinner after the show, the next day while on a boat tour, at the airport, and back at home with Quinn.

This isn’t really a review, more a reflection of Marcus and my impressions and the day of theatre we experienced seeing Harry Potter and the Cursed Child in London.

What Marcus Taught Me in Iceland

The Most Important Lesson from our Trip Happened in Iceland.

Can you imagine what it’s like to have your own child’s value, as a human being, debated? A world where you regularly encounter the opinion of scientists and doctors who are literally working to eliminate the entire segment of humanity of which your child is a part…and it all happens without public outrage. In fact, it is happening throughout entire cultures.

I frequently listen to the band Of Monsters and Men when I am writing. I love their lyric videos and their melodies drive emotion. Of Monsters and Men happen to be from Iceland.

Iceland and Down Syndrome

Iceland has become a trigger word in the Down syndrome community.

Last August, CBS News “On Assignment” reported the birth rates of people with Down syndrome are diminishing to nearly

Highlights from our trip

Highlights from our travel journal:

As many good vacations do, this one began on a Friday morning at what Marcus calls “Dark early.”

“I hate dark early!” he said. Don’t we all?  Getting up at 4:00 am (after getting settled at about midnight, everything sneaks up on you, you know?) To hurry up and wait and hurry up and wait. Short flight #1, short layover, on to flight number two – Yea! Marcus decided Mimosa was the way to fly and I agreed. Cheers!

Marcus holding a mimosa on the 2nd plane. Cheers!

Only two more planes to go…

When we reached our layover in Iceland, Marcus taught me just how to deal with…humans. What Marcus Taught me in Iceland.

When we arrived in Edinburgh Saturday morning. We rested, we set up

Events

Advocate Stories: Listen, Respond, Amplify

October 16 @ 6:30 pm - 8:30 pm

Be Beautiful, Be Yourself

October 20 @ 5:00 pm - 9:00 pm

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