In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.
Following the “rules of blog” – I sometimes share moments from then (we have 33 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
The Key to A Happy Life
The Key to a Happy Life? Knowing What’s for Breakfast
Or a reliable PBJ Toast
I saw this post on my social network of choice:
We Relate
Every weekday Marcus has peanut butter and jelly toast and a yogurt for breakfast. Today is Sunday which means Marcus and I will have cheese omelettes.
When we’re traveling, Marcus makes his own toast. But whenever Quinn is around, Quinn makes the toast. I don’t know why both Quinn and Marcus prefer this, but they do.
The only day with breakfast “unplanned “ is Saturday morning, though Marcus will inquire ahead.
Can Confirm
Even though every weekday breakfast is the same, Marcus will frequently double check the menu and status the day before. Maybe while we’re making dinner,
Bunch To Do: Part One
With Age comes…
In my young adulthood, I thought that with age life would get simpler. Ha!
Hahahahahaha! Haha…sigh, wipes tear, It hasn’t.
Today, while I was reading about “mindfulness” I was also thinking about this blog.
I know…I know! I’m always both trying to “be in the present moment” and also thinking…all. the. things.
Once thing I’ve been dwelling on is the complicated relationship between a website and LLMs. I know that every word I put onto the web is now stollen fodder to feed the machine. And yet, if I don’t put the words out, my previous commitment to sharing a living history, our story, is…well…not shared.
There are tips to even cater to the machine, in the hope that a subtle link will lead the human looking for an answer, to
Love Someone with Down Syndrome? Don’t Miss This.
I’ll keep this short and sweet, my friends. (But plenty of links if you want to know more.)
For those of you that love someone with Down syndrome, I urge you to sign up and attend the upcoming webinar from the Global Down Syndrome Foundation: New Research Discoveries and How to Participate. Tuesday, November 4, 2025 at 12pm to 1:15pm MT. https://www.globaldownsyndrome.org/global-webinars/
The Global Down Syndrome Foundation “walks the walk” when it comes to working on improving the lives of people with Down syndrome. (Not to mention when they encourage models to walk the runway-walk, it’s a fabulous night and an amazing event. But that’s not what I’m talking about today.)
From when I sat in the back of a room full of researchers and shared my
No One is Just One “Thing”
I recently had an opportunity to share my opinion on a topic I feel pretty strongly about. Which, as you know, does not narrow down the options AT ALL.
Anyway, the crux of it is this: we do our children and ourselves a disservice with the cultural habit of limiting, or implying limits, when supplying the one line answer expected response to: “What do you want to be when you grow up?” and, “What do you do?” As if one line can sum up a life story or person’s identity.
None of us are, or should be, defined by a singular statement. (Giant asterisk here, footnote to follow.) Because there isn’t only one role or title worthy to claim as our entire identity. Life doesn’t work that way, nor should it.
Multiple Roles
In a few