Following the “rules of blog” – I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
One day, several years ago, my father asked me, “Why do you want to be a writer?”
“Immortality” I answered.
I think this is common for artists. Since accepting the challenge to write and share about Legacy, I’ve seen it sprinkled in many songs and art references. Pretty much the entire musical of Hamilton is obsessed with the theme of legacy.
Only a few weeks ago the lead singer of The Cranberries, Dolores O’Riordan, died at 46. Forty-Six. Too young. She touched many lives in her short life and her work will live on. This song, “When You’re Gone” begins with the line, “Hold on to love, that is what I do…”
How Will History View Us
I hope against hope that after I am
“What makes your husband a good husband?” I was once asked by a colleague.
I’ll tell you: He scrapes the ice and snow from my car, early in the morning, even though he doesn’t even have to be up yet. He brings me hot tea when I wake up from a nightmare in the night. He asks the question, “What can I do to help you?” and then, and this is the important bit, he does that.
You see, my “love language” is “acts of service.” I come from a heritage where saying, “I love you,” is redundant. If you love me, truly, then I know because of how you help me, how you help us, how you act toward me, and those who I love. That’s how I feel your love.
This January hit me with the dark, gray, cold, post-holiday
What One Young Man with Down Syndrome Wants You to Understand
Yesterday I learned a little bit about a man with Down syndrome named Stephen, and his mother, who wished he had never been born. I don’t know much except what I read from a tabloid article written by his mother. When Stephen was very young, about three years old he cried in the night, a lot. He cried for many hours because of…Pain? Confusion? The article did not say, it was not his story, it was his mother’s, so we learned that she also found that time to be painful and even, in her desperation, considered killing Stephen as a solution.
After that Stephen spent several years in an institution. Later, as an adult, but still faced with severe communication issues, he
hen I decided to venture out into Blogland, I wanted to share our experiences and teach people, to be positive and tell positive stories. To share the good truths. Also Tragedy Then, just as I entered the blog world, a horrible and preventable tragedy, introduced me to another range of allies and advocates.