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Grown Ups and Downs – A Down Syndrome Blog 2018-02-07T18:31:47+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Marcus Speaks His Truth

Early in  Amy and the Orphans, is the line, “I speak my truth.” Today we’re going to hear a #Truth Marcus shared with me about the show. 

We celebrate Amy and the Orphans, with Jamie Brewer (Amy) and Eddie Barbanell (Andy u/s) for many reasons. One is that while the audience is lulled by small identifying steps with characters who are “typical,” they are simultaneously being prepped to listen to a person with Down syndrome speak truth. Also, hard facts spotlighting the treatment of people “put away,’ maltreated, neglected, and generally handled in less than humane conditions come forward.

The recognition that this man or woman standing center stage could have

Today’s Topic: Laughter

In 7th grade, I prepared my first, “front of class” speech. My topic: laughter. Why do we laugh? More than just funny, sometimes out of nervousness, fear, and breaking tension. I included some cheesy, cheesy jokes, to…you know…break the ice.

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I’m told that my father’s family once said to my mother, “The problem with your family is you judge happiness by laughter.” I’ve reflected on both what’s true, and maybe not so bad, about this perspective. I should write a post about that…later.

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I recently wrote, “LEARNING TO CELEBRATE LOVE” I put a lot of thought into it (more than the 5 minutes stressing me out right now*) ANYway, in it I reflect on how we (as society) teach our children to hate/fear, so do we teach love (or not). And that love takes both practice and

Fangirl’s List of Amy and The Orphan’s Press

Amy and the Orphans, currently running off-Broadway, rocked my world.

But I’m not the only one talking about it, not even close! Check out all this press!

 New York Times Article:

Near the end of 2015, the playwright Lindsey Ferrentino and the actress Jamie Brewer were watching clips of Donald J. Trump, then a candidate, appearing to mock a reporter with a physical disability. They were horrified — which made their work on a new play, centered on a character with Down syndrome, all the more significant.

“From that point forward, the play took on a new meaning for me,” Ms. Ferrentino said.

“Big time,” Ms. Brewer added.

Read More. 

Review: Amy and the Orphans

Can you handle the truth?

When my son was born, in 1990, the pediatrician gave me a book on parenting. The first line read something like, “Do not put your child in an institution,” yet a social worker hovered in the hallway, checking if I was, in fact, bringing my baby with Down syndrome home.

Today my son, Marcus, is an author, speaker, and advocate. Also, an avid theater buff, so when the Playbill article came onto his feed that Jamie Brewer, an actress with Down syndrome, would be playing the lead role of Amy in a Broadway play, I asked him, “Should we go to see Jamie Brewer on Broadway?”

“Yes. The answer is yes.”

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