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Grown Ups and Downs – A Down Syndrome Blog2018-02-07T18:31:47+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Before The Beginning

The ladies lived in a house on a campus that sprawled between a few small Midwestern towns. It gave them a home that was less clinical than an institution and more encompassing than a single group home. Everyone who lived there required extensive and consistent attention. Leigh screamed from her chair and pounded the air with her flailing wrists. No, screamed is not accurate, she yelled. A scream infers emotion and her voice boomed without emotion, just loud. Leigh lived on the other side of the house, the ladies on my side could all stand, walk and eat independently, but from there each needed varied levels of assistance with her daily routines. I don’t know how these women came to their disability or how long they lived separate from their families. Were there complications at birth? A terrible sickness or accident along the way? They varied in age from early

Our Living History

us10 years ago, I was the customer service and marketing manager in the family print shop and Quinn and I celebrated our 10-year wedding anniversary with a delightful party at the Joslyn Art Museum and I wore a fabulous dress. I celebrated a breakthrough in my health and was in the few “perfect weight” years of my life. (Well, to be honest, I had one singular year of perfectly healthy weight. Ah well…but this post isn’t about my body or body image, this post is about what a whirlwind time is and can be and where we’ve come from and…)

Anyway! December 2007 to 2010 were important yet seemingly invisible years of work and

Dear 2019, I Will

So, that time of year, eh? Reflection and looking forward. The last several years I’ve embraced choosing a word of the year theme.

To recap:

In 2015 I said, I want it all. (Also, I said Publish) In 2016 I said, Purpose. In 2017 I said, Patience. In 2018, I said: Produce.

Some years I’ve stayed true and been more successful with my theme than others. In 2018 we did produce, not as prolifically or as completely as I had intended last December, but I tend to shoot rather high. 🙂  We certainly didn’t slouch and we learned a lot, again. (More on that here, if you care to look around at “People’s Choice – Or What We Learned This Year“)

So…

 

 

Dear 2019,

I enter the New Year with a willingness to learn, ambitious goals, and an acceptance

Events

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