Slide thumbnail
Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

The Most Generous Holiday

Halloween

It’s no surprise to me how many people we’ve met that tell us that Halloween is their  favorite holiday, and/or the favorite of a person they love with Down syndrome.

There’s a lot of theatrics to Halloween. You can be whatever you want and people are like…cool!

In my experience, Halloween is the most generous of holidays. Although it can be secular in who may choose to participate, it’s not secular on who is welcomed and included. In fact, everyone is included no matter how you look or speak. Anyone who

Legacy of Love

Immortality

One day, several years ago, my father asked me, “Why do you want to be a writer?”

“Immortality” I answered.

I think this is common for artists. Since accepting the challenge to write and share about Legacy, I’ve seen it sprinkled in many songs and art references. Pretty much the entire musical of Hamilton is obsessed with the theme of legacy.

Early in 2018, the lead singer of The Cranberries, Dolores O’Riordan, died at 46. Forty-Six. Too young. She touched many lives in her short life and her work will live on. This song, “When You’re Gone”  begins with the line, “Hold on to love, that is what I do…”

Me too.

###

This was originally posted in 2018, I’m sharing again today because my FTSF peeps have asked, “

Reluctant Hero

Solitude

Ever want to run away? Maybe that’s too drastic. There are certainly times for all of us when we want to get away. Maybe to be  completely left alone, but for me usually I want to get away with just my two boys, Quinn and Marcus. We do alone, together, pretty well. 

Even so, Marcus and I are apt to go to cities first and participate in the bustle. We go to exciting destinations and do something filling; not always, but often our location is chosen by something asked of us by others.

Quinn urges us to get away to somewhere quiet. Low pressure. To go somewhere and unwind, empty out the cluttered mind, release, and breathe. 

We haven’t been/done that for, well too long a while. My spirit is craving it. Somewhere quiet, isolated, unwind, unscheduled, restful and refill

The Sun Says “Hurry Up” and Other Fall Thoughts


I’m going to share a little old and a little new today. In November of 2014 I wrote:

AUTUMN PLAYS TRICKS WITH TIME

Waking moments are fewer

The sun says “Hurry up” while

The wind pushes us along and

I swear time moves faster by

Taunting my to-do lists and

My goal sheets

Each minute holds the seconds more loosely than the last

And they fall away quickly like the leaves that desert the trees

Then swirl along the ground

Warning of the darkness beckoning as

The year readies to close its eyes and then

In a moment’s blink

A New Year wakes and we begin again.

 

Events

Tweets