Following the “rules of blog” – I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.
Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!
The Best Endings Aren’t
They all lived happily ever…pleased me as a child. Even as an adult, I like a story to have a “happy ending.” In real life, though, how many happy endings are there, really? I shudder to think.
I often Focus on Beginnings
For example, the beginning of Marcus, my first and only child: A beautiful (of course) son, born with deep blue eyes (which stayed blue), a heart defect (which needed repair), and a triplicate of the 21st chromosome.
When he was nearly two years old and weighed only 18 pounds, I carried him through the hospital doors the day before the necessary surgery to repair the hole in his beating heart.
Heart Surgery – My Baby Boy
That night, with him sleeping in my arms, I almost fled. I almost stole him away from the place where I knew they would
Note: this post includes affiliate links, a giveaway, and opinions galore!
There is so much I want to tell you about Kari and also about her son, Thorin. Thorin reminds me so much of a little Marcus, what with his endless imagination and knack for monster storytelling. Just last week, Kari shared on her blog, “A Story While Making Dinner”
Kari and I are a lot alike, too. We are both writers, and mothers, and wishing for a more tolerant universe. I feel like the Wagner-Peck household feels a bit like ours, although each of the (so far) life stories look, from the outside, quite a bit different from ours.
Kari is part of my inspiration to re-boot the What Are The Odds series. She rolled the dice and got five
I remember emotional points, touch the bruises, and swim in the revelation. However, I have a terrible memory for dates. At what age did I learn to ride a bike? When was my first road trip? Even important moments, like when did my son take his first steps? When did he begin using complete sentences? Or when did he start, really start, to tell me the stories that play though his imagination? Marcus just turned 27 and I think I’ve been saying “for over ten years” for three, maybe four, years.
I could dig back into the notebooks. There are so many notebooks. Most writing sessions begin with Marcus rubbing his hands in anticipation and exclaiming; “It’s time!” Then he’s off – dialogue, characters, and action coming fast and furiously. Me trying to
This week we shared stories that advocate for and with people with disabilities from around the world. Really great stuff.
Here is a line-up of the links and take a trip down the rabbit-hole-of-awesomeness for more!
- We shared “Simon” and “Happy Birthday CJ”
- We identified some of the key, important messages and shared them together with a recap here in “Getting the Advocate Message”
- Simon is only one of eight great stories. Check out The Amy Street Productions: http://www.amystreet.net
- We can all use the super short advice from SCOPE in the UK – H.I.D.E. for ourselves and to teach our communities.
By the way, although we are across the