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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

I Cried Every Year on My Son’s Birthday

Baby!I cried when he turned one and I knew heart surgery was on the horizon. I cried when he turned five and we were fighting with the public schools. When he turned 11, and…Why did I cry when he turned 11?

I sat next to my dad and said, “My birthdays don’t bother me. His make me a wreck.”

“That’s because you’re getting old.” My father suggested with his normal tact and compassion.

No, that wasn’t it. It was the unknown. With each year we were one year closer to the great unknown: Adulthood.

Who do you think you are?

I’ll bet this guy never worries about what he’s wearing.

Have you ever heard the phrase…“She’s really got to know who she is to wear an outfit like that!”  Have you ever worn an outfit like that? I’ve seen them in the store and thought I wish I could wear that.

It’s not that it doesn’t fit. (Well, not always that.) It’s often more about the style or the color.

Who do you think you are?

Have you ever written a “Bio?” It’s hard! I have several. When presenting with Marcus there’s a different one than when I speak for business. When I write “for work” there’s a different bio than when I write for, well, me. How does that equate? I mean, I’m still me. In every situation, who I am hasn’t changed. Yet…

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Hello Friends. Well, it’s May. Month five of 2020. Almost the halfway mark. What a doozie! 

You know the old saying, “Man plans. God laughs.” Or, put another way: 

But I planner I am. A very long 5 months ago I chose my 2020 word of the year. It’s actually been on the forefront of my mind a lot in this current crisis. It was, and is, maximize. 

In that post I explained: “This year we will be pushing the boundaries (again) of what is “expected.” Some of it will be about growth, some will be about making the most of, or making the best of,  the harder bits of life.”

What I meant when I chose that word was “In

What’s Cookin’ (Bonus: Recipe Links!)

It’s Sunday. The day I write and the day I cook. I aggressively try to protect these two rituals. 

To me: Food is love. Food is survival. Food is creative art. Food is budgeted. Food is reward. Food is comfort. Food is control. 

I plan menus with care, choose foods that nourish, fill, and treat. Over the years Quinn’s dietary needs, restrictions, and requests have changed widely, and expanded my cooking knowledge and range. My food restrictions have changed too. Marcus’ tastes have expanded rather than the opposite, so that’s a bonus. 

In these last two months of weirdness, cooking is about the only worthwhile home activity (outside of sleeping) that I’ve accomplished. Truth be told, I’ve leaned into it. As I said: Food is comfort. Food

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