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Grown Ups and Downs – A Down Syndrome Blog2018-02-07T18:31:47-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Day In the Life – and What a Day!

Resharing this post, a little #TBT, WOW! such fun to look back at the building of Black Day, the auditioning for the Global events, this was a pretty “normal” day in those days…A_Day_in_the_Life_Stacked_4cI love this #LifeWithDs concept, the Day in the Life idea. I love that it gives folks a chance to see the real day-to-day, the normalization of what life is like for our families. Sooooo, it may be poor form to share this day, April 8th, 2015, but as I opened my computer, I knew…this is the day:

Today we got up just as the sun did.

In fact,

Take Me Up and #WDSD19

“Up” by Timothy Wright

The bright blue sky in this photo projects the endless pallet of possibility. The balloon displays the colors of diversity, happiness, hopefulness, cooperation, and potential; it brightens the sky with hope. 

With a basket, it can carry us to an endless view of the world below, both vast yet suddenly insignificant. When the breezes push, we may hold hands and fascinate over the landscape, challenge our ideas of where the horizon stops, and float over minutia to embrace the vast. 

The air we once took for granted because we couldn’t see, hold, or keep it, lifts us to a new perspective. And we cherish it. 

I see in this photo the emotion of parenthood. 

Parenthood

A giant everyday collision between the vast and minute, the possible and present.

So Close, Yet So Far Away #LeaveNoOneBehind #WDSD19

I proudly share and emphasize the achievements of people with Down syndrome.

I intentionally spotlight success stories. 

All the while keeping in mind a spotlight, in some ways, emphasizes the presence of only a few on the stage. 

I forever marvel at how much more our world has to gain if we just gave everyone a chance at a solid educational foundation and appropriate health care. 

How much further along would our planet be *right now* if “the few” didn’t cut off these opportunities for the many? 

The next great scientist, artist, peace-maker, leader, and educator could be among the masses who are in wait without a proper school or nourishment.   

I mean it! 

For example, at this time last year  Amy and the Orphans was on the Broadway stage. These

Marcus the Musical and the Dreamer

One of the things I love about my son is his ambition. His dream of creating and starring in his own Broadway Musical is never daunted. Last time we went to the theatre to see a Broadway Across America production he stood in front of an empty poster frame and gave me the thumbs up. “This,” he told me, “Is for Marcus the Musical.” He believes in himself and this dream.

The fact that he can’t read a script doesn’t concern him, he's preparing his own. The burdens of official training in the areas of playwriting, acting, stagecraft, and so on…not an issue.

I would never, ever, tell him he won’t, or worse can’t, reach this dream. His passion is clear and he spends both waking and sleeping moments working toward this.

Another 23 year old without training and facing the uphill, dare I say impossible, mountain of learning and struggle, would likely give up. In fact, most young people are talked out of their dreams and move on because they “know better.”

Events

DSDN Rockin’ Mom Retreat

September 6 - September 7

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