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Grown Ups and Downs – A Down Syndrome Blog 2017-10-17T06:45:10+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Getting the Advocate Message

Marcus and I spoke together at a conference yesterday. The focus of the association and its mission is

to promote, find or create, then continue supported and meaningful employment for people with disabilities. Their theme: “Mission Possible.”

Love it!

We shared a few advocate stories from around the world. Today we are sharing them with you, too. The first one is from New Zealand, where a film company has made eight short films focusing on people in their community. (See “Celeste is Brilliant” here and watch all of them here.)

In this short film, meet Simon.


Then we talked about the messages of this short film.

I was delighted, and not surprised, that the folks in the room recognized these key points:

“He Understands.”

Remember the

If You’re Worried About a World Without Down Syndrome, Read This and Share

My Most Important Job

Roughly 27 years ago the universe looked over my resume, took into account my previous experience, my qualifications, and my goals and gave me a job that I was totally – I mean utterly – unqualified for.

Parent.

And as an added bonus and complete surprise, the universe also immediately promoted me, as a show of good faith, to the role of “special needs parent.”

The application process was cleverly disguised, I won’t bore you with those details but the final result was a new lifelong job with very few personal days, occasional opportunities for “working” vacations, and joyful benefits beyond what I ever expected.

From the Outside, it didn’t look good

At the time of my son’s birth I was an unemployed, single, barely-in-college student.

Celeste is Brilliant – That is all

OK Everybody, Today is a super cool treat from friends-we-haven’t-met halfway around the world.

Let me first introduce “Celeste.”

Celeste, the person, lives in New Zealand and this film, “Celeste” focusses around her role as an “extra” in her favorite soap opera. I saw this film earlier this year at the Ethan Saylor Memorial Film Festival. I L-O-V-E it!  Since then, this short film has won awards around the world and is only one of a series of short films featuring people with disabilities. 

The folks behind the filming, Bella Pacific Media and Amy Street, are working to make a feature length film featuring Celeste and some of her friends. Viv Kernick, of Bella Pacific Media, has this to say about the series.

“Amy Street is a web series about

The Letter that Rocked my World

article

Last week Google led me to a letter written by a 6th grader that rocked my world.

The letter was a state level winner of the Letters About Literature contest sponsored by the Library of Congress. It was written to author Beth Vrabel about her book, Pack of Dorks.  I was previously unaware of this chapter book series. Although I don’t know how, because they appear to be immensely popular and also includes a touch of diversity within their stories. 

Letter About Literature Contest

The Library of Congress website Read.gov  about the contest:  

Students are asked to read a book, poem or speech and write

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