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Grown Ups and Downs – A Down Syndrome Blog2019-07-21T10:46:08-05:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question in this down syndrome blog, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

Inspiration and Art-Work

After several posts on or relating to love, we’re wrapping up with inspiration. 

 

Love and Inspiration

Inspiration is a notion tossed around like it’s a miracle, a blessing from the muse. A flash of light, an idea from the invisible. 

It’s true; inspiration is a blessed apparition which appears when you’re open and looking. Then, once the beautiful notion comes to you, you’ve got to hunker down and do the work. Inspiration may give you a nudge, but nothing gets completed without doing the work. 

It’s a lot like love that way. After the initial spark, what are you going to do to keep going? Where’s the follow through? That comes from you. 

I’ve come to believe that love: giving, sharing, and celebrating

Creating Begins with What If

Creation Begins with “What If?”

The thing about What if is that it’s the beginning of…everything. Every successful entrepreneur asks, What if? Every inventor, every teacher, and every person who creates asks, what if?

Then there are the people who nurture people, often (but not limited to) those people who create people, parents we call them, so many what ifs….

What ifs that keep you up at night. What ifs that you celebrate. What ifs you didn’t even think of…

From before our children are even born until forever.

In advocacy we encourage others to think of What if?

Change Begins with “What If?”

What if every room was accessible? What if we provided a complete and approproate education to every student, regardless of privilege and perception?  What if everyone had a place on the platform?

What if we listened?

Oh

Our Story of Down Syndrome: The Short Version

For the first 21 years or so of Marcus’ life, 

“Down syndrome” didn’t really come up,

and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this?

Boring.

Not to me, you understand. But to an outsider. Seriously. What exactly is so exciting about going to work and going to school and living in Middle America? Not the stuff of reality TV programming. And I was cool with that. This is how it is for most families, regardless of their child’s abilities, most of life is spent just living.

Not only was I not sharing, I also wasn’t really seeing/listening/reading about any other families, locally

Once Upon a Time

Love…True Love

In my teen years, I thought love was all fire and ice. Love was meant to be an extreme emotion full of passion, rage, jealousy, and greed. Love meant big fights and deep pain, only real love caused the kind of pain that proves how true the love is. 

Obviously (or not) I didn’t have many, maybe any, positive relationship role models at the time. So, I relied on music, movies, and books for love directions. 

Oh. Dear. 

Therefore the tropes of forbidden love, violent, and reckless love were bought and sold by me as the truth. I thought jealousy = proof of true love. And possession, including the desire to possess me, was emotion sprung from passion and, again, true – only true love. 

Oh. My. 

This set of conclusions did not

Events

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