Can Time Stand Still

I wish had a time machine.

One where I could stop time for just myself. I could work. I could create. I could sleep. And then, when I step back into the spinning world, I would spend new time with those I care for in a most enjoyable and leisurely way. Oh, I could give so much more!

In the machine I could learn! I could learn between the minutes to be better prepared for the next. To improve. To grow.

It’s the biggest cheat I ever wished for.

Down Syndrome and Creativity

WOW – Let’s Flashback, this post originally went live 5 years ago, November 2014. So much still applies, I’m reposting it.

Via Puppets in the Early Years

Marcus being Orange Marcus being Orange

When Marcus was much younger, just beginning school, he used to form his hands into puppets and they would chatter away. Not all of it was understandable, but words slipped through. One of his early teachers suggested we discourage this, but we resisted. I felt then that if that’s how he wanted to process and share

2019-11-22T11:50:11-06:00Categories: Grown Ups & Downs|Tags: , , , |1 Comment

Come So Far And Yet

 

Just less than thirty years ago, I was handed a book written for parents of a new baby with Down syndrome that began with, “Do not put your baby in an institution.” Literally, this was the first line of the book.

Still, a social worker asked if we were “taking the baby home.”

Sigh.

Today I know women who coach doctors and nurses about how to share information about possible, potential, and available, instead of “put away.”

Be Beautiful, Be Yourself

Last weekend Marcus and I attended an

Dignity, Risk, Harness, Support

As for me…

 

To be clear, When I look at this view I am not filled with excitement or exhilaration. I am filled with fear and anxiety.

It’s said that fear can’t kill you…I wonder.

I’ve mentioned before about my father and brothers, they often make decisions pursuing pleasure, whereas I often make decisions based on avoiding pain. In fact, I wonder if we even process pain, and the memory of pain, in the same ways.

In the strengths finder application, my