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Grown Ups and Downs 2017-09-23T10:57:07+00:00
mardra and marcus

In fact, sharing the theme of “What are you going to do when he grows up?” Has been my honor on sites across the globe and also ‘live’ at a Listen to Your Mother Event.

Following the “rules of blog” –  I sometimes share moments from then (we have 27 years of material to choose from) and I share moments from now. If I leave you with a question, feel free to ask it. If I leave you with a revelation, feel free to share it. If I post a general rant or big news that has nothing to do with Marcus, well, that’s the blogger’s prerogative.

Here are some blogs or subjects to start with. Or just scroll down for our most recent adventures!

The Storyteller and the Truth – Part One

 

I remember emotional points, touch the bruises, and swim in the revelation. However, I have a terrible memory for dates. At what age did I learn to ride a bike? When was my first road trip? Even important moments, like when did my son take his first steps? When did he begin using complete sentences? Or when did he start, really start, to tell me the stories that play though his imagination? Marcus just turned 27 and I think I’ve been saying “for over ten years” for three, maybe four, years.

I could dig back into the notebooks. There are so many notebooks. Most writing sessions begin with Marcus rubbing his hands in anticipation and exclaiming; “It’s time!” Then he’s off – dialogue, characters, and action coming fast and furiously. Me trying to transcribe his words at a speed that makes

Links to Recently Shared Advocacy Stories

This week we shared stories that advocate for and with people with disabilities from around the world. Really great stuff.

Here is a line-up of the links and take a trip down the rabbit-hole-of-awesomeness for more!

 

By the way, although we are across the

Getting the Advocate Message

Marcus and I spoke together at a conference yesterday. The focus of the association and its mission is

to promote, find or create, then continue supported and meaningful employment for people with disabilities. Their theme: “Mission Possible.”

Love it!

We shared a few advocate stories from around the world. Today we are sharing them with you, too. The first one is from New Zealand, where a film company has made eight short films focusing on people in their community. (See “Celeste is Brilliant” here and watch all of them here.)

In this short film, meet Simon.


Then we talked about the messages of this short film.

I was delighted, and not surprised, that the folks in the room recognized these key points:

“He Understands.”

Remember the

If You’re Worried About a World Without Down Syndrome, Read This and Share

My Most Important Job

Roughly 27 years ago the universe looked over my resume, took into account my previous experience, my qualifications, and my goals and gave me a job that I was totally – I mean utterly – unqualified for.

Parent.

And as an added bonus and complete surprise, the universe also immediately promoted me, as a show of good faith, to the role of “special needs parent.”

The application process was cleverly disguised, I won’t bore you with those details but the final result was a new lifelong job with very few personal days, occasional opportunities for “working” vacations, and joyful benefits beyond what I ever expected.

From the Outside, it didn’t look good

At the time of my son’s birth I was an unemployed, single, barely-in-college student.

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