How Much Love, Worry, and Wishes

I admit that when Marcus was a child, the future scared me. A whole lot. In fact, I used to cry on his birthday more out of fear than joy. Seems silly now, it’s just – look at that kid! He was so full of life and I had the devil whispering on my shoulder…

Finally, I woke up and noticed the futility of all those years of asking, “What are you going to do when he grows up?”

Everyone Needs Help

A Gift From the Universe to Change the World

coffee shop

My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations building there earlier this year. Today I write solo and the notebook to my right has the lyric, “The universe is resting in my arms” (from Nina Gordan’s song “Tonight”) written and

On Becoming Marcus’ Mother

The sun shone in through the small hopper window near the ceiling. I woke up slowly and watched the sun beams that drifted to the floor. I knew it. I was a mother. From the outside I did not look…ready.

In my heart, I was. I smiled. I quit smoking.

The next week I went to the Doctor’s office for a pregnancy test. I didn’t bother buying one from the store because, well, as I said – I knew.

The test came back negative. The nurse and I spoke a bit about why I thought I was pregnant, her head shook dismissively as she wrote in the chart. I began eating lemons, friends looked at me and shrugged. Three weeks later I bought a pregnancy test at the drug store and it confirmed my knowledge. I returned to the doctor.

2020-06-14T08:30:36-05:00Categories: Grown Ups & Downs|Tags: , , , |14 Comments

Why Marcus is Getting His Haircut at Home (Or Down Syndrome and Covid – Part Two)

We will be celebrating Marcus’ birthday next weekend. The big Three-O. Oh yeah! And all celebrations will be virtually shared with friends and family from our home.

Here’s the deal, you can believe your life is not at risk by whatever outside actions you are enjoying and, actually, for yourself, you may be right.

But hear this – that is not the case in our house. In fact, I live in paralyzing fear that I’m not stringent enough about our exposure factors.

Allow me

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