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Home 2017-09-11T19:17:13+00:00

A Few Introductions

A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Most Recent Posts

Rockin’ Moms Write

Grown Ups & Downs, The Innocent Prince|

This weekend was another Rockin’ Mom Retreat. The DSDN puts on a great party, a great conference, and hits the refresh/reset button for hundreds of moms. Moms of children, babies and under 5 years old mostly, with Down syndrome.  Some of these momma’s are anxious to share their story and most of them are gearing up to change the world. Enter round table session on writing and blogging. I shared with them some links on publishing options, from how to build a blog up to

If You’re Worried About a World Without Down Syndrome, Read This and Share

Grown Ups & Downs|

My Most Important Job Roughly 27 years ago the universe looked over my resume, took into account my previous experience, my qualifications, and my goals and gave me a job that I was totally – I mean utterly – unqualified for. Parent. And as an added bonus and complete surprise, the universe also immediately promoted me, as a show of good faith, to the role of “special needs parent.” The application process was cleverly disguised, I won’t bore you with those details but the final result was a new

News, Events, Opinions

The Letter that Rocked my World

Last week Google led me to a letter written by a 6th grader that rocked my world. The letter was a state level winner of the Letters About Literature contest sponsored by the Library of Congress. It was written to author Beth Vrabel about her book, Pack of Dorks.  I was previously unaware of this chapter book series. Although I don’t know how, because they appear to be immensely popular and also includes a touch of diversity within their stories.  Letter About Literature Contest The Library of Congress website Read.gov  about the contest:   Students are asked to read a

Special Chronicles PodCast

While Marcus and I were in NYC, we joined Dan via technology, and chatted about WDSD, Black Day, The Parent's Guide to Down Syndrome, and also the #NotSpecialNeeds campaign. Pop it in while you're running, walking, cleaning the house, or whatever it is you do while listening to a podcast. 🙂 In preparation, watch the video of the Coordown campaign, that focusses on the #NotSpecialNeeds concept - here it is, also.     So we chatted a bit about this and our thoughts and impressions. Now, Dan rocks this gig and you should poke around his website: //specialchronicles.com/ If you

By | March 29th, 2017|Categories: Grown Ups & Downs, In the News|Tags: , , |0 Comments

The Video Of Marcus Speaking at the United Nations

For real. If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! Here's what we said: Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora. I wrote a book called Black Day: The Monster Rock Band. I’m a storyteller, an actor, and a singer. I’m glad to be here with people from around the world   talking about Down Syndrome. New York City is my favorite. This is my mom, Mardra. She’s a writer, too. Hello. Thank you for inviting Marcus

By | March 24th, 2017|Categories: Grown Ups & Downs, In the News|Tags: , , |6 Comments

Events

IA-APSE Employment Summit

September 20 @ 8:00 am - 5:00 pm

Monster Black Day Bash at the Bookworm!

October 28 @ 2:00 pm - 4:30 pm

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