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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Down Syndrome Blog
Parent's Guide To Down Syndrome

Author and Down Syndrome Advocate- Most Recent Posts

Who will be Moved to Stop the Cruel Child Separation Policy?

Change Your World, Grown Ups & Downs, The Innocent Prince|

Fair warning and disclaimer: these opinions are, in fact, my own. Move. Families across the globe move because they are forced to flee. Many more remain in hiding, are tortured, and die a long, slow, and painful death of body and spirit. Homes are ripped away due to war. Discrimination. Segregation. Oppression. Asylum, a word of hope. A process of desperation. Shall I ever have to plead for Asylum? I don’t know. Policies, as they stand currently, mean my family is not welcome to relocate in most English-speaking countries.

On the Patience Necessary

Grown Ups & Downs|

Ahhh, Patience...

Grandma just moved into her new apartment so we went to to the store and meandered ever so slowly down the aisles to gather her list. A new toilet brush (though there were house-keepers cleaning the apartment), a gallon of bleach (don’t argue), crackers and snacks (to supplement the three complete meals served daily).

To be fair, she was also healing from heart surgery, so Marcus and I walked each careful step beside her.

Skip ahead to: shopping complete.

Marcus and Grandma waited outside the door while I pulled the car up to the curb. We unloaded the groceries and, as is the custom, Marcus headed off to do his duty of returning the cart.

I helped Grandma into the car and moved into the driver seat. I saw Marcus go in and could feel from the distance a little confusion. What he’s used to is a cart corral outside, but since we were so close to the front he took the cart inside. When he walked through the doors he could see to his left where the cards were corralled, but that area was blocked off. He had to continue through another set of double doors to return the cart, then proceed to the exit doors to come out. Little tricky. I could see him trying to work this out. I waited. I knew he would. And he did.

Ten Lessons from the FTSF Blogging Community

Grown Ups & Downs, The Innocent Prince|

Sundays are my most guarded day. It’s the morning that I get to write. Then, throughout the day I do the prep and caring duties of laundry and cooking and bills and other what-nots necessary to be ready for the coming week. Also, Sundays I take time to read other blogs. Several Sundays ago, while reading the variety of words that my friends at the Finish the Sentence Friday blog hop gang created, I thought, I learn so much from this scattered group of writers. So, I popped an

Down Syndrome Author News, Events, Opinions

Marcus’ Interview on WYFF (Video)

It's all GO around here (and beyond) in the month of October. Last weekend we had a whirlwind trip to Greenville, SC. Where we met up with good friends, old and new, and had some great events. But what you want to see is right here: Marcus' morning interview on WYFF: Wondering where in Greenville you can pick up a copy of Black Day: The Monster Rock Band? M. Judson Books and Musical Innovations!       

Video Interview with Marcus

Did you catch this on Meriah Nichols' blog? Marcus is part of a great series call "Voices from the Disability Community" As an ally, I learn so much from these, and we're delighted Marcus was invited to partake. Voices From The Disability Community: Marcus Sikora Marcus Sikora is the first Voice interview via video! Like a lot of other things he does, he’s breaking ground here. Check it out here: http://bit.ly/2yhhLkK  

By |September 17th, 2017|Categories: In the News|Tags: , |0 Comments

Actor, Singer, PB&J Connoisseur – Introducing 2017 Be Beautiful Be Yourself Ambassador: Marcus Sikora

From the Global Down Syndrome Foundation official release: As an author, singer, actor and self-advocate, Marcus Sikora has already accomplished more in his life than most other 26-year-olds. Now he’s gathering yet another accomplishment as the 2017 Be Beautiful Be Yourself Ambassador. When it comes to describing the Nebraska native, many people tend to use the word creative. The description aligns perfectly with Marcus’ ambitions, in 2015 he released his first animated short and children’s book Black Day: The Monster Rock Band to wildly positive reviews. “I’ve always liked to make stories,” Marcus said. “One day, I had an idea

By |September 16th, 2017|Categories: In the News|Tags: , |0 Comments

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