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Author, Speaker, and Down Syndrome Advocate

A few introductions. A website with my name on it, but about much more than me. Click here for the most recent blogs. New to our site? Scroll down to see our projects and adventures. We look forward to meeting you, too!

Down Syndrome Blog
Parent's Guide To Down Syndrome

Author and Down Syndrome Advocate- Most Recent Posts

The Real Challenge

Grown Ups & Downs|

What One Young Man with Down Syndrome Wants You to Understand . Yesterday I learned a little bit about a man with Down syndrome named Stephen, and his mother, who wished he had never been born. I don’t know much except what I read from a tabloid article written by his mother. When Stephen was very young, about three years old he cried in the night, a lot. He cried for many hours because of…Pain? Confusion? The article did not say, it was not his story, it was his

Through the Dreamers We Hear the Hum

The Innocent Prince|

99 words - “Come on, let’s go…” Boots once muddied from play now covered in sand. Nights full of treacherous poison and days under the beating sun. The child sleeps without rest, walks along, follows. She yearns for the bed behind them. It was shared, but home. The promise ahead is…cold. She trudges in boots broken through to her tiny calloused feet and hides as a car passes. “Through the dreamers we hear the hum,” plays from the radio, the air-conditioner blares, to the next gas stop or rest

In which I talk about the long hard winter

The Innocent Prince|

There was a time when I lived in chronic physical pain. This pain caused a battle between my body and mind. My mind rebelled by slowly killing me. The war inside of me waged, gradual and nearly invisible...until it wasn’t. I think of that time like a lifetime behind this one. When I am reminded of the triggers that prodded me in that life, I am still affected, but differently. Like a reverse acupuncture. Those winters full of pokes and pain, fear and unworthiness, sit like one long winter

Down Syndrome Author News, Events, Opinions

Video Interview with Marcus

Did you catch this on Meriah Nichols' blog? Marcus is part of a great series call "Voices from the Disability Community" As an ally, I learn so much from these, and we're delighted Marcus was invited to partake. Voices From The Disability Community: Marcus Sikora Marcus Sikora is the first Voice interview via video! Like a lot of other things he does, he’s breaking ground here. Check it out here: http://bit.ly/2yhhLkK  

By | September 17th, 2017|Categories: In the News|Tags: , |0 Comments

Actor, Singer, PB&J Connoisseur – Introducing 2017 Be Beautiful Be Yourself Ambassador: Marcus Sikora

From the Global Down Syndrome Foundation official release: As an author, singer, actor and self-advocate, Marcus Sikora has already accomplished more in his life than most other 26-year-olds. Now he’s gathering yet another accomplishment as the 2017 Be Beautiful Be Yourself Ambassador. When it comes to describing the Nebraska native, many people tend to use the word creative. The description aligns perfectly with Marcus’ ambitions, in 2015 he released his first animated short and children’s book Black Day: The Monster Rock Band to wildly positive reviews. “I’ve always liked to make stories,” Marcus said. “One day, I had an idea

By | September 16th, 2017|Categories: In the News|Tags: , |0 Comments

The Letter that Rocked my World

Last week Google led me to a letter written by a 5th grader that rocked my world. The letter was a state level winner of the Letters About Literature contest sponsored by the Library of Congress. It was written to author Beth Vrabel about her book, Pack of Dorks.  I was previously unaware of this chapter book series. Although I don’t know how, because they appear to be immensely popular and also includes a touch of diversity within their stories.  Letter About Literature Contest The Library of Congress website Read.gov  about the contest:   Students are asked to read a

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