I Wish I Knew

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I wish I knew…Oh my, we could be here a while. There is no end to what I wish I knew. To what I want to know. To what I am trying to learn and what I wish was just deposited into my tiny brain without me having to work so damn hard for it!

bubblesLately I’ve been reflecting and noticing what I’ve learned over the last few years especially about medical and social issues relating to disability, of course most specifically

What No One Told Me About NDSC Conventions

I said Marcus would Never…

Five years ago I wrote in an article that published in the Omaha World Herald that Marcus would never live independently. I did. I said it like an undeniable fact.

Then Again…

house for saleTwo years ago I wrote, “Marcus Talks about Moving Out.”

This last weekend I recognized in him even more independence and he and I talked about a “Marcus Meeting” where we will tackle some of his life goals, like an apartment and (gulp)

#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway

grand prize

We are super excited to kick off March 2016 and the #WDSD16 buildup with another virtual book tour of The Parent’s Guide to Down Syndrome, complete with another grand prize giveaway! Woop Woop!

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The Parent’s Guide to Down Syndrome:
Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood

Introducing The Parent’s Guide to Down Syndrome

 

PGTDS - bToday let’s talk about the newly published book, The Parent’s Guide to Down Syndrome.

(Insert quiet side squeal of delight. Clear throat. Begin again.)

Dear New Parents,

In the spring of 2015, the original title suggested by Adams Media included the phrase: “new parents.” So as Jen and I began our drafts, new parents and the idea of speaking to new parents, lingered in the forefront of my mind.