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Down Syndrome and Self-Talk

2019-07-27T13:57:26-05:00Categories: Grown Ups & Downs|Tags: , , |

It's that inclination to rant or work something out that leads me to what I now know is called "self-talk." I also work through questions and answers when I'm working on a tricky problem, be it in reality or fiction, and there's always a lot of self-talk going on in the car with my steering wheel. You don't even want to know what I say to my computer.

Marcus used to ask who I was talking to, now he doesn't bother.

So, when Marcus followed suit with his own self-talk, I wasn't alarmed. And I certainly never thought of it as part of Down syndrome.

When it Comes to my Son with Down Syndrome, I’m Not an Optimist

2019-07-07T19:22:54-05:00Categories: Grown Ups & Downs|Tags: , , , |

“We can still come back and win. It’ll only take 2 touchdowns and a field goal,” I said to my grandfather during one of the many brutal football bowl games of my childhood.

“No. They won’t.” He sat with his arms crossed, defeat accepted, but he still watched the game to the end.

“You’re a pessimist.” I moved to the floor in front of the TV.

“I’m a realist,” he said.

A Pessimist, an Optimist, a Realist

“A realist,” he explained to me, “doesn’t think the worst will happen every

Today’s Topic: Laughter

2018-03-17T13:46:52-05:00Categories: Grown Ups & Downs|Tags: , , , |

In 7th grade, I prepared my first, “front of class” speech. My topic: laughter. Why do we laugh? More than just funny, sometimes out of nervousness, fear, and breaking tension. I included some cheesy, cheesy jokes, to…you know…break the ice.

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I’m told that my father’s family once said to my mother, “The problem with your family is you judge happiness by laughter.” I’ve reflected on both what’s true, and maybe not so bad, about this perspective. I should write a post about that…later.

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I recently wrote, “LEARNING TO CELEBRATE LOVE” I put a lot of thought into it (more than

The Center of the Cycle is Loving

2018-02-15T08:28:01-06:00Categories: Grown Ups & Downs|Tags: , , , |

currenlty collage

 

Currently and As Always…

loving, craving, demanding, questioning, worrying

#TBT Post

Loving. From the moment I met him, and each day since, I marvel at the miracle that is Marcus. At times I muse at how he doesn’t look like me, or much like the child, I thought I would have created. No. He looks just like him. He does in so many ways act like the child I thought I’d have, he’s dramatic and funny and creative. And more than anything,

My Heart Vs The Monsters

2018-01-12T17:44:27-06:00Categories: Grown Ups & Downs|Tags: , , , , |

hen I decided to venture out into Blogland, I wanted to share our experiences and teach people, to be positive and tell positive stories. To share the good truths. Also Tragedy Then, just as I entered the blog world, a horrible and preventable tragedy, introduced me to another range of allies and advocates.

Momaha: How I went from gold medal worrier to luckiest mom I know

2017-11-22T18:42:22-06:00Categories: In the News|Tags: , |

Published on Momaha via Omaha.com earlier this week:

Earlier this month, I stood next to my son, Marcus, while he spoke to a room of more than 1,200 spectators. It was unbelievable to witness.

The event was the star studded “Be Beautiful, Be Yourself” fashion show, which took place Nov. 11 in Denver. The Global Down Syndrome Foundation hosts this event each year to raise money to continue research and improve medical care for people with Down syndrome. Marcus was named the 2017 “Be Beautiful, Be Yourself” Ambassador.

As the parent

Marcus’ Speech at the Be Beautiful Be Yourself Event (Video)

2018-12-02T11:45:16-06:00Categories: Grown Ups & Downs|Tags: , , , |

SO, it’s been a week now.

One week since Mr. Marcus Sikora did his second runway walk at the Be Beautiful, Be Yourself fashion show. I can tell you now that at the event last year, Marcus told me that he wanted to give his own speech at this event. That it was not my idea. I even, gently, asked him a few times, “Are you sure?”

His answer, “Yes.”

So, he did.

Marcus in a top hat speaking at the podium of the Global Down Syndrome Event

We shared the video of his

Everyone Needs Help

2019-07-26T19:31:54-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , , , , |

A Gift From the Universe to Change the World

coffee shop

My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations building there earlier this year. Today I write solo and the notebook to my right has the lyric, “The universe is resting in my arms” (from Nina Gordan’s song “Tonight”) written and

Marcus and Moving Mountains

2017-03-05T12:01:35-06:00Categories: Grown Ups & Downs|Tags: , , , , , , , |

PJs and SchoolThis last Tuesday Marcus and I travelled to Bennington, NE. We shared the animated short and book Black Day: The Monster Rock Band with the students. The kids were all in their pajamas as it was “pajama day.” And also Dr. Seuss week. So the PTO invited a local author in to tell his story. 

Big Kids Classes

Also, with the “big kids” Marcus and I talked about what makes a good story, the importance of set,