Marcus Speaks His Truth

Early in  Amy and the Orphans, is the line, “I speak my truth.” Today we’re going to hear a #Truth Marcus shared with me about the show. 

We celebrate Amy and the Orphans, with Jamie Brewer (Amy) and Eddie Barbanell (Andy u/s) for many reasons. One is that while the audience is lulled by small identifying steps with characters who are “typical,” they are simultaneously being prepped to listen to a person with

Everyone Needs Help

A Gift From the Universe to Change the World

coffee shop

My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations building there earlier this year. Today I write solo and the notebook to my right has the lyric, “The universe is resting in my arms” (from Nina Gordan’s song “Tonight”) written and

What No One Told Me About NDSC Conventions

I said Marcus would Never…

Five years ago I wrote in an article that published in the Omaha World Herald that Marcus would never live independently. I did. I said it like an undeniable fact.

Then Again…

house for saleTwo years ago I wrote, “Marcus Talks about Moving Out.”

This last weekend I recognized in him even more independence and he and I talked about a “Marcus Meeting” where we will tackle some of his life goals, like an apartment and (gulp)

Our Story of Down syndrome: The Short Version

For the first 21 years or so of Marcus’ life, 

“Down syndrome” didn’t really come up,

and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this?

Boring.

Not to me, you understand. But to an outsider. Seriously. What exactly is so exciting about going to work and going to school and living in Middle America? Not the stuff of reality TV programming. And I was