adult with down syndrome Archives - Page 2 of 4

Down Syndrome and Self-Talk
Down Syndrome and Self-Talk

Down Syndrome and Self-Talk

It's that inclination to rant or work something out that leads me to what I now know is called "self-talk." I also work through questions and answers when I'm working on a tricky problem, be it in reality or fiction, and there's always a lot of self-talk going on in the car with my steering wheel. You don't even want to know what I say to my computer.

Marcus used to ask who I was talking to, now he doesn't bother.

So, when Marcus followed suit with his own self-talk, I wasn't alarmed. And I certainly never thought of it as part of Down syndrome.

Mardra2019-07-27T13:57:26-05:00Categories: Grown Ups & Downs|Tags: adult with down syndrome, busy brain, self-talk|10 Comments

Marcus Speaks His Truth
Marcus Speaks His Truth

Marcus Speaks His Truth

Early in Amy and the Orphans, is the line, “I speak my truth.” Today we’re going to hear a #Truth Marcus shared with me about the show.

We celebrate Amy and the Orphans, with Jamie Brewer (Amy) and Eddie Barbanell (Andy u/s) for many reasons. One is that while the audience is lulled by small identifying steps with characters who are “typical,” they are simultaneously being prepped to listen to a person

Mardra2019-07-26T19:30:08-05:00Categories: Grown Ups & Downs|Tags: adult with down syndrome, advocacy, Amy and the Orphans, broadway, Down syndrome in history, Jamie Brewer, Marcus Wisdom Bomb, now, storytelling as advocacy, Truth|9 Comments

What No One Told Me About NDSC Conventions
What No One Told Me About NDSC Conventions

What No One Told Me About NDSC Conventions

I said Marcus would Never…

Five years ago I wrote in an article that published in the Omaha World Herald that Marcus would never live independently. I did. I said it like an undeniable fact.

Then Again…

Two years ago I wrote, “Marcus Talks about Moving Out.”

This last weekend I recognized in him even more independence and he and I talked about a “Marcus Meeting” where we will tackle some of his life goals, like an apartment and (gulp)

Mardra2016-07-26T11:12:36-05:00Categories: Grown Ups & Downs, Parent's Guide to Down Syndrome|Tags: adult with down syndrome, change the world, change your world, learning is fun, NDSC, now|0 Comments

IQ, Creativity, & Looking For a Job
IQ, Creativity, & Looking For a Job

IQ, Creativity, & Looking For a Job

I have begun the process of applying for assistance with the Department of Health and Human Services. I’m told this is something we should have done years ago because it is an arduous process with a looonnngggg waiting list for services. Having sent the initial application and appropriate medical forms, I have one last set of paperwork to send: his MDT and IEPS. You other parents are likely already familiar with these acronyms, but in case not, the MDT is a Multi-Disciplinary Team (evaluation) and the IEP is Individualized Education Program (Plan in the UK).

OK – still with me?

Mardra2016-01-06T21:50:03-06:00Categories: Grown Ups & Downs|Tags: adult with down syndrome, DHHS, employment services, IQ, job, Madonna School, paperwork|10 Comments

I said Marcus would Never…

Then Again…

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