Our Story of Down syndrome: The Short Version

For the first 21 years or so of Marcus’ life, 

“Down syndrome” didn’t really come up,

and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this?

Boring.

Not to me, you understand. But to an outsider. Seriously. What exactly is so exciting about going to work and going to school and living in Middle America? Not the stuff of reality TV programming. And I was

IQ, Creativity, & Looking For a Job

I have begun the process of applying for assistance with the Department of Health and Human Services. I’m told this is something we should have done years ago because it is an arduous process with a looonnngggg waiting list for services. Having sent the initial application and appropriate medical forms, I have one last set of paperwork to send: his MDT and IEPS. You other parents are likely already familiar with these acronyms, but in case not, the MDT is a Multi-Disciplinary Team (evaluation) and the IEP is Individualized Education Program (Plan in the UK).

OK – still with me?

In Which I Explain MardraSikora.com

sigToday I am going to try to explain myself, this website, its name and purpose, but not necessarily in that order. Not necessarily in any order, as a matter of fact. I think I’ll start with answering a few “why’s” instead.

Why did I create this website?

theinnocentpricebookI created MardraSikora.com as a platform builder for a novel series called The Innocent Prince. The Innocent Prince is a fantasy that explores the “what if” a prince were born

Yes, My Son, an Adult with Down Syndrome Lives at Home

The first thing you should know is this: Marcus is an adult with Down syndrome and he lives with us, not because he has to but because we want to live together. Like millions, really, well over 6 million, families with adult children who live “at home” in the US today, this is the best option for us right now.

For the first 23 years or so, the most common question I received about Marcus was: “What will you do when he grows up?”

Now the most common question is: “Will he always live with you?”

I have an answer for this.

“Maybe.”

This well thought out answer is based on the following factors: