Why Marcus is Getting His Haircut at Home (Or Down Syndrome and Covid – Part Two)

We will be celebrating Marcus’ birthday next weekend. The big Three-O. Oh yeah! And all celebrations will be virtually shared with friends and family from our home.

Here’s the deal, you can believe your life is not at risk by whatever outside actions you are enjoying and, actually, for yourself, you may be right.

But hear this – that is not the case in our house. In fact, I live in paralyzing fear that I’m not stringent enough about our exposure factors.

Allow me

The Human Trisome Project: Are You Ready?

 Photography by Jensen Sutta And courtesy of Global Down Syndrome Foundation Photography by Jensen Sutta
And courtesy of Global Down Syndrome Foundation

I am not a trained medical professional or scientific-terminology inclined. I am, however, a parent. Which for many people is the catalyst into an array of verbiage regarding anatomy, new medical issues, etc. For me, that’s when I began to learn about genetics and diagnoses previously unknown (or little known) to me.

As I became an advocate, I learned of more, new (to me) medical

The Good, The Needed, The Awesome – A #WDSD16 Wrap Up

A #WDSD16 Wrap Up

WDSD16For you other geeks out there, I will now share about our #WDSD experience. For those of you who stick with me, there is an extra special treat at the end, the nugget Marcus shared with me at the end of the day.

From Webcam to Being There

For the previous 4 years, I have watched the United Nations celebrate World Down Syndrome Day via live webcam.  The first year I watched it was the first year it launched and before I

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