Measuring the Year

“Five hundred twenty-five thousand six hundred minutes
How do you measure, measure a year?”

 

I measure in lessons, in losses, in failures, in wins, and of course, in words. Each of these are compiled in spreadsheets (as I force the abstract into quantifiable cells) and many bits shared right here, under the public eye. Hmm, the public forum. For those of you following along, you may recall the first post of 2019 began:

Oh. My. God. This effing January.

So, there’s that.

I didn’t “triumph” over 2019, like my public facing plan. And for 2020, I’m still

2019-12-22T11:05:32-06:00Categories: Grown Ups & Downs|Tags: , , , |2 Comments

Come So Far And Yet

 

Just less than thirty years ago, I was handed a book written for parents of a new baby with Down syndrome that began with, “Do not put your baby in an institution.” Literally, this was the first line of the book.

Still, a social worker asked if we were “taking the baby home.”

Sigh.

Today I know women who coach doctors and nurses about how to share information about possible, potential, and available, instead of “put away.”

Be Beautiful, Be Yourself

Last weekend Marcus and I attended

A Life Uncontained (And baseball memories with Video)

I’m reminiscing today because later this week I plan to join some business colleagues at a White Sox baseball game, it got me thinking about our few, yet powerful, baseball experiences. Like the time Three years ago Marcus threw the opening pitch at our local baseball field. I think he nailed it. It was a fun game with other DSA families. I also got “locked out” of Facebook that day for sharing too many photos, I guess…? I don’t know, actually, but here’s the video Facebook made anyway

Marcus Speaks His Truth

Early in  Amy and the Orphans, is the line, “I speak my truth.” Today we’re going to hear a #Truth Marcus shared with me about the show. 

We celebrate Amy and the Orphans, with Jamie Brewer (Amy) and Eddie Barbanell (Andy u/s) for many reasons. One is that while the audience is lulled by small identifying steps with characters who are “typical,” they are simultaneously being prepped to listen to a person

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