Calling My Bluff

 

A few months ago, a simple picture of me as a child surfaced and, it surprised me when my psyche shattered into a million broken pieces. I grieved, I gnashed, I wept…for that child, that sweet girl with bright blond hair and a silly grin. I wanted to hug that child and smooth her hair. I’d kind of pushed out all the recollections of that child.

Quote I saw floating around this week. Ah, yes…that.

As I’ve mentioned, even recently, if there was ever a “complicated” mother-daughter relationship, ours qualifies.

And Now…

Last week

Mystery of Marcus

The Bates Motel asks: “What mysteries do you want to see unraveled for the future for your child with Down syndrome?” That’s a heavy question and one that I hesitate to answer via the internet. But that’s why we’re here, right? To shed light and truth. Yes, it is. SO, I will continue and you can and should look around at the blog-hop links below. This community is nothing if not prolific. :)

I purposefully waited to write my thoughts until after attending a webinar provided by the Global Down Syndrome Foundation and DADS (Dads Appreciating Down Syndrome) about research and Down syndrome. Two primary scientists spoke, I think most of it was English though I can’t actually confirm. Some of the words could have been Greek.

That’s a joke.

Mostly.

The information included a lot of talk about chromosomes, and genes, and cells and proteins, especially the amyloid precursor protein. This particular protein is a culprit and connecting factor between Down syndrome and Alzheimer’s disease. That’s the way I heard it anyway.

...

But most of that mystery, I must leave to science. I have a squishier wish than that...

You want hope regarding Ds and Alzheimer’s? Here’s some…

There are many awesome moments over the last month watching Marcus, seeing the kids, meeting parents, and on. The one today,  falls into the “and on” category.

I was able to attend the morning sessions of the 4th Annual Down Syndrome Symposium. The keynote speaker, Ira Lott, spoke on “The Relationship between Down syndrome and Alzheimer’s Disease.” SO this is a thing I’ve been following as closely as a layman can. I’m preparing to put more of my growing body of resources and science into normal people speak. In the meantime

This One Time

This one time while my mom was a bartender, she served drinks to Lou Gossett Jr., another time she served Bill Murray.

mom and me with captionThis one time my mom and I camped in the Black Hills, just a little out of the way. We pitched a tent and turned on a battery powered radio. She taught me how to Texas Two Step on the dirt road, and Boozer, her giant dog, danced along.

This one time I asked my mother if it