Allies

Today I want to talk about allies. People who will stand by us, support us, even go to war if needed.

Friends who became allies

Our friends, seriously guys, I don’t mean to show off but – c’mon! Through thick and thin. Highs and lows. Our friends celebrate with us every win, with the understanding of what each win means to us. Many of our friends are traveling over 500 miles to celebrate with us at the Be Beautiful, Be Yourself Fashion Show. And

Mystery of Marcus

The Bates Motel asks: “What mysteries do you want to see unraveled for the future for your child with Down syndrome?” That’s a heavy question and one that I hesitate to answer via the internet. But that’s why we’re here, right? To shed light and truth. Yes, it is. SO, I will continue and you can and should look around at the blog-hop links below. This community is nothing if not prolific. :)

I purposefully waited to write my thoughts until after attending a webinar provided by the Global Down Syndrome Foundation and DADS (Dads Appreciating Down Syndrome) about research and Down syndrome. Two primary scientists spoke, I think most of it was English though I can’t actually confirm. Some of the words could have been Greek.

That’s a joke.

Mostly.

The information included a lot of talk about chromosomes, and genes, and cells and proteins, especially the amyloid precursor protein. This particular protein is a culprit and connecting factor between Down syndrome and Alzheimer’s disease. That’s the way I heard it anyway.

...

But most of that mystery, I must leave to science. I have a squishier wish than that...

I Wish I Knew

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I wish I knew…Oh my, we could be here a while. There is no end to what I wish I knew. To what I want to know. To what I am trying to learn and what I wish was just deposited into my tiny brain without me having to work so damn hard for it!

bubblesLately I’ve been reflecting and noticing what I’ve learned over the last few years especially about medical and social issues relating to disability, of course most specifically

Empathy & Inclusion, Is it Equal or Is it Fair?

1 in 700

theatre2When my son was born I read that 1 in 700 babies are born with Down syndrome. That statistic reassured me. I mean, that’s a lot of people. Surely every American at least knows someone who knows someone with Down syndrome.

It turns out, The Global Down Syndrome Foundation says that 38% of all Americans personally know someone with Down syndrome. I don’t really get that because the