Mystery of Marcus

The Bates Motel asks: “What mysteries do you want to see unraveled for the future for your child with Down syndrome?” That’s a heavy question and one that I hesitate to answer via the internet. But that’s why we’re here, right? To shed light and truth. Yes, it is. SO, I will continue and you can and should look around at the blog-hop links below. This community is nothing if not prolific. :)

I purposefully waited to write my thoughts until after attending a webinar provided by the Global Down Syndrome Foundation and DADS (Dads Appreciating Down Syndrome) about research and Down syndrome. Two primary scientists spoke, I think most of it was English though I can’t actually confirm. Some of the words could have been Greek.

That’s a joke.

Mostly.

The information included a lot of talk about chromosomes, and genes, and cells and proteins, especially the amyloid precursor protein. This particular protein is a culprit and connecting factor between Down syndrome and Alzheimer’s disease. That’s the way I heard it anyway.

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But most of that mystery, I must leave to science. I have a squishier wish than that...

I Wish I Knew

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I wish I knew…Oh my, we could be here a while. There is no end to what I wish I knew. To what I want to know. To what I am trying to learn and what I wish was just deposited into my tiny brain without me having to work so damn hard for it!

bubblesLately I’ve been reflecting and noticing what I’ve learned over the last few years especially about medical and social issues relating to disability, of course most specifically

Empathy & Inclusion, Is it Equal or Is it Fair?

1 in 700

theatre2When my son was born I read that 1 in 700 babies are born with Down syndrome. That statistic reassured me. I mean, that’s a lot of people. Surely every American at least knows someone who knows someone with Down syndrome.

It turns out, The Global Down Syndrome Foundation says that 38% of all Americans personally know someone with Down syndrome. I don’t really get that because the

This Summer – Are You Kidding Me?

First Pitch

Last night Marcus threw the “first pitch” at our local baseball field, home of the Omaha Storm Chasers. Our DSA, the Down Syndrome Alliance of the Midlands, invited him to represent. (He took the position seriously check out the fun video at the end of this post of his prep and pitch.) 

Marcus Sikora and Carlos Gonzalez Photography by Jensen Sutta And courtesy of Global Down Syndrome Foundation Marcus Sikora and Carlos Gonzalez Photography by Jensen Sutta
And courtesy of Global Down Syndrome Foundation