Marcus’ Three Lock Down Lessons (Or How’s Marcus Coping?)

“How’s Marcus coping with all of this?” A common question from friends, family, coworkers and colleagues. One concern folks have is for his social well-being. Because many see Marcus as a very social guy, especially those having experienced his exuberant love for a good party or his enthusiastic greetings which light up any room. He does enjoy learning, travel, and working, for sure. However, he is also, by nature, an introvert, so the alone time mixed with occasional online social activities suits him fine.

2020-08-08T13:36:50-05:00Categories: Grown Ups & Downs|Tags: , , |8 Comments
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Down Syndrome and Self-Talk

It's that inclination to rant or work something out that leads me to what I now know is called "self-talk." I also work through questions and answers when I'm working on a tricky problem, be it in reality or fiction, and there's always a lot of self-talk going on in the car with my steering wheel. You don't even want to know what I say to my computer.

Marcus used to ask who I was talking to, now he doesn't bother.

So, when Marcus followed suit with his own self-talk, I wasn't alarmed. And I certainly never thought of it as part of Down syndrome.

2019-07-27T13:57:26-05:00Categories: Grown Ups & Downs|Tags: , , |10 Comments
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When Don’t Panic Meets Brian Wilson

 

No, it’s true.

Kind of all over the board, again.  On my write-about-to-do list: Alzheimer’s Disease and research, Marcus is honored by the Rise Awards, so many friends doing super cool stuff, self-advocates being publicly (and wrongly) “put in their place,” IQ cans and cant’s, how is cant’s supposed to be spelled, when cans outweigh everything and when they don’t, Marcus’ most recent school event, his upcoming modelling debut at the Global Fashion show.  Also on my mind is the Ethan Saylor Film Festival, the Human Trisome Project, and, if you can believe it, time-management.  Consequently, I’ve been

2016-10-23T12:34:26-05:00Categories: Grown Ups & Downs|Tags: , , , |2 Comments
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Three Steps to Clear My Brain

Recurring Themes

Click on Picture to read full disclosure Click on Picture to read full disclosure

I picked up an old diary. I mean an old diary of mine, from my youth. There were two very similar themes that ran through those scribbled pages to what I lament publicly even now: time and energy. Mostly time. No matter what is done, I always seem to focus on the more that needs to be done. And it seems I have always blamed myself for the inability to do it all.

2014-11-11T15:18:14-06:00Categories: Change Your World, Grown Ups & Downs|Tags: , |3 Comments
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