Marcus and Moving Mountains

PJs and SchoolThis last Tuesday Marcus and I travelled to Bennington, NE. We shared the animated short and book Black Day: The Monster Rock Band with the students. The kids were all in their pajamas as it was “pajama day.” And also Dr. Seuss week. So the PTO invited a local author in to tell his story. 

Big Kids Classes

Also, with the “big kids” Marcus and I talked about what makes a good story, the importance of set,

Changing One Person at a Time, starts with me

paperworkToday the big pressure is: Marcus’ probate paperwork is due tomorrow.

Shit.

I’ve shared before how much I loathe the paperwork process that comes with guardianship (although I am simultaneously understanding of its purpose).

Too Tired For paperwork.

Travel makes me very tired. Anxiety also makes me tired. I’ve done a lot of sleeping this week. The bad news about anxiety tired (as if you don’t know) is that it makes a person too tired to think clearly to do the stuff that needs

What No One Told Me About NDSC Conventions

I said Marcus would Never…

Five years ago I wrote in an article that published in the Omaha World Herald that Marcus would never live independently. I did. I said it like an undeniable fact.

Then Again…

house for saleTwo years ago I wrote, “Marcus Talks about Moving Out.”

This last weekend I recognized in him even more independence and he and I talked about a “Marcus Meeting” where we will tackle some of his life goals, like an apartment and (gulp)

Response to “Those Mongols”

“Those Mongols”

The recently publicized quote from a UK public official using the term “mongols” as a descriptor of people with Down syndrome reminded me of the reason I won’t be seeing David Sedaris perform live when he comes through town next year. 

In his book, Naked, David Sedaris tells us about his time as a volunteer at a mental institution during his youth, including this anecdote:

“The day proceeded, everything from a mongoloid teenager with an ingrown toenail to a self-proclaimed swami who had fashioned himself a turban of urine-soaked towels.