A Healing Balm for the Down Syndrome Community and Allies

The Global Down Syndrome Foundation each year hosts a fabulous event called Be Beautiful, Be Yourself. At this year’s event on November 14th,  we’re going to celebrate. We’re going to cry. We’re going to push forward. I’m the mother of an adult with Down syndrome.  There’s so much that I want to tell you, I hardly know where to begin…

Shall I start with 2020 and Covid? Of how scared I am…I fear the possibility that my very breath can bring in a virus that kills people with Down syndrome at

Marcus’ Three Lock Down Lessons (Or How’s Marcus Coping?)

“How’s Marcus coping with all of this?” A common question from friends, family, coworkers and colleagues. One concern folks have is for his social well-being. Because many see Marcus as a very social guy, especially those having experienced his exuberant love for a good party or his enthusiastic greetings which light up any room. He does enjoy learning, travel, and working, for sure. However, he is also, by nature, an introvert, so the alone time mixed with occasional online social activities suits him fine.

Marcus, Aristotle, and Douglas Adams Advice

In my young adulthood, I frequently said, “This is no time to panic…” Often at random moments, to no one in particular, mostly at work. 

After reading the book series, The Hitchhiker’s Guide to the Galaxy, then seeing the classic BBC TV of the same name, the simpler phrase “Don’t panic” including a cheeky smirk and a deep sigh is a common refrain in my household. 

The first time I recall Marcus purposefully using the phrase “Don’t panic” was a memorable audition night in Denver seven or so years ago. 

Why Marcus is Getting His Haircut at Home (Or Down Syndrome and Covid – Part Two)

We will be celebrating Marcus’ birthday next weekend. The big Three-O. Oh yeah! And all celebrations will be virtually shared with friends and family from our home.

Here’s the deal, you can believe your life is not at risk by whatever outside actions you are enjoying and, actually, for yourself, you may be right.

But hear this – that is not the case in our house. In fact, I live in paralyzing fear that I’m not stringent enough about our exposure factors.

Allow me

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