Everyone Needs Help

A Gift From the Universe to Change the World

coffee shop

My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations building there earlier this year. Today I write solo and the notebook to my right has the lyric, “The universe is resting in my arms” (from Nina Gordan’s song “Tonight”) written and

Covid-19 and Down Syndrome: Starter Info

Who knows?

I think it’s natural, as a parent, to try to – to want to – protect. Therefore, sometimes we don’t address issues, important stuff, that needs to be faced together, because we don’t want to share the burden of knowledge. 

That said, If there’s anything I’ve learned as Marcus’ mom it’s this: never assume he doesn’t know or won’t understand. 

Early, often, and honest explanations are important to Marcus’ ability to cope with difficult

Our Story of Down Syndrome: The Short Version

For the first 21 years or so of Marcus’ life, 

“Down syndrome” didn’t really come up,

and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this?

Boring.

Not to me, you understand. But to an outsider. Seriously. What exactly is so exciting about going to work and going to school and living in Middle America? Not the stuff of reality TV programming. And I was

Down Syndrome and Creativity

WOW – Let’s Flashback, this post originally went live 5 years ago, November 2014. So much still applies, I’m reposting it.

Via Puppets in the Early Years

Marcus being Orange Marcus being Orange

When Marcus was much younger, just beginning school, he used to form his hands into puppets and they would chatter away. Not all of it was understandable, but words slipped through. One of his early teachers suggested we discourage this, but we resisted. I felt then that if that’s how he wanted to process and share

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