29 Years and Still…

The day Marcus was born, and I was given that book, I remember these two things from page one: First: “Do not put your child in an institution.” Wait…What!?! No one is putting my child anywhere, what are you even talking about?

Then secondly, the average life expectancy of a person with Down syndrome was 30 years.

Keeping in mind I was 19 years old at the time, do you remember what 30 looked like when you were 19? There would be

Living Like We’ve Got 100 Junes

Hey June,

I’m not ready for you yet!  I had so many good intentions for May, and yet the bills are still scattered on the dining room table, because my office is still in disarray, and even the rebounder trampoline is still covered in papers I meant to get to. Get To. (Sigh)

Ah but June…

I am typing this from my back porch with the birds chirping away. The breeze is ever so slight. There’s not a cloud in the sky and I’m sitting in the shade from a giant cottonwood. My neighbor’s dogs start

Our Amazing Adventure

To my son

Sometimes, the dreaming, the planning, and the anticipation that build up a destination are all part of the excitement. Other journeys take unexpected turns, are filled with surprising delights, and have anxious moments. They lead us out of our comfort zones, seeing, touching, and exploring worlds new to us. Our journey so far, has been both.

Soon you will turn 27, and I feel as blessed as ever to be on this amazing adventure with you.

The day you were born, I held you in my arms and our path


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