Marcus Makes the Most of Every Meeting

On Tuesday, March 21st, we met people from around the world. Marcus gave copies of Black Day: The Monster Rock Band to a person with, or a family member of a person, with Down syndrome from Italy, Algeria, Mexico, Canada, and the US. 

World Down Syndrome Day at The United Nations

We listened to the advocacy challenges and wins of our worldwide Down syndrome community. The mom from Kyrgyzstan, and her brave story.  Advocates from Romania and Palestine and more. and Always, my favorite part of the WDSD at the UN is hearing from the self-advocates,

An Easy Target or Face of a Friend?

A friend of mine owns a tattoo shop. Next to his shop is a bar (as is the custom). He let us know that said bar has certain karaoke nights. So Marcus and I went to check it out. I was nervous, as I always am, when the evening began. Nervous about karaoke? Yes. But more nervous about how Marcus will be received, how he will be treated. 

An Easy Target 

When Marcus was born and I heard the words Down syndrome, before I knew anything of heart surgery or other complications, I feared that

2015-08-19T09:56:02-05:00Categories: Grown Ups & Downs|Tags: , , |5 Comments

How to Get a Good Tip

“Would he like a sippy cup?” The hostess says as she leads us to a seat.

“What?” I ask.

“Does he need a sippy cup?”

“You mean this young man with the attractive 5 O’clock Shadow? No. He does not.”

… Marcus and I like to go out to restaurants and coffee shops. Being the “work club,” we take that time to work. I sit with my computer or notebook and he too sits with a notebook. And though he is drawing in his notebook, when a server recently asked “Would he like a coloring book?”

2018-04-15T16:03:54-05:00Categories: Grown Ups & Downs|Tags: , , , , |5 Comments

What I’m really trying to say is…

This summer Marcus and I took a “Theater Road Trip.” We had a great time, it was a good idea. Here's a moment from the first night at dinner after the show:

While Marcus and I enjoyed our dessert, I watched the family that came in shuffle into the booth caddy-corner from us. The family wore full T-21 regalia. I assume they were at a function of some sort

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