The Parent's Guide to Down Syndrome Archives

If You’re Worried About a World Without Down Syndrome, Read This and Share

My Most Important Job

Roughly 27 years ago the universe looked over my resume, took into account my previous experience, my qualifications, and my goals and gave me a job that I was totally – I mean utterly – unqualified for.

Parent.

And as an added bonus and complete surprise, the universe also immediately promoted me, as a show of good faith, to the role of “special needs parent.”

The application process was cleverly disguised, I won’t bore you with those details but the final result was a new lifelong job with

Mardra2017-08-20T17:46:27-05:00Categories: Grown Ups & Downs|Tags: Arguing Eugenics, Down syndrome, Down Syndrome Association of the Midlands, Down Syndrome Diagnosis Information & Support Act, Down Syndrome Diagnosis Network, eugenics, Global Down Syndrome Foundation, Lettercase.org, Mark Leach, NDSC, prenatal diagnosis, The Parent's Guide to Down Syndrome|6 Comments

#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway
#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway

#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway

We are super excited to kick off March 2016 and the #WDSD16 buildup with another virtual book tour of The Parent’s Guide to Down Syndrome, complete with another grand prize giveaway! Woop Woop!

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The Parent’s Guide to Down Syndrome:
Advice, Information, Inspiration, and Support for Raising Your Child from Diagnosis through Adulthood

Mardra2017-09-30T11:11:01-05:00Categories: Grown Ups & Downs, Parent's Guide to Down Syndrome, Parent's Guide to Down Syndrome Book Reviews|Tags: #WDSD16, giveaway, The Parent's Guide to Down Syndrome|0 Comments

Why you won’t find a Life Expectancy Stat in The Parent’s Guide to Down Syndrome
Why you won’t find a Life Expectancy Stat in The Parent’s Guide to Down Syndrome

Why you won’t find a Life Expectancy Stat in The Parent’s Guide to Down Syndrome

Down Syndrome Life Expectancy When Jen Jacob asked the seemingly straightforward question on Facebook during Down Syndrome Awareness Month: ”What was life expectancy for someone with Down syndrome in 1910? What is it today?” This prompted a short “earful” from me, because the answer is not as easy as people are led to believe.

Mardra2019-06-23T08:34:06-05:00Categories: Grown Ups & Downs|Tags: advocacy, Global Down Syndrome Foundation, life expectancy, nationals, NDSS, race, racial disparities, The Parent's Guide to Down Syndrome|2 Comments

Introducing The Parent’s Guide to Down Syndrome
Introducing The Parent’s Guide to Down Syndrome

Introducing The Parent’s Guide to Down Syndrome

Today let’s talk about the newly published book, The Parent’s Guide to Down Syndrome.

(Insert quiet side squeal of delight. Clear throat. Begin again.)

Dear New Parents,

In the spring of 2015, the original title suggested by Adams Media included the phrase: “new parents.” So as Jen and I began our drafts, new parents and the idea of speaking to new parents, lingered in the forefront

Mardra2018-10-14T10:06:09-05:00Categories: Grown Ups & Downs, Parent's Guide to Down Syndrome|Tags: Blog Hop, Dear New Parents, giveaway, Reviews, The Parent's Guide to Down Syndrome|1 Comment

If You’re Worried About a World Without Down Syndrome, Read This and Share

My Most Important Job

#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway

#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway

Why you won’t find a Life Expectancy Stat in The Parent’s Guide to Down Syndrome

Why you won’t find a Life Expectancy Stat in The Parent’s Guide to Down Syndrome

Introducing The Parent’s Guide to Down Syndrome

Introducing The Parent’s Guide to Down Syndrome

Dear New Parents,

Title