Some of the Marcus Equation

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests.

IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test, he was three. He communicated mostly with action/expression and sign language. But not that day, well I take it back. He was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or did not.

One moment that stood out, the psychiatrist held before Marcus a doll with its head off, laying

2017-12-17T12:58:32+00:00 Categories: Grown Ups & Downs|Tags: , , , , |4 Comments

Marcus Sikora Global’s 2017 Ambassador Video

Marcus’ Big Night

at the Be Beautiful, Be Yourself 

included a tribute video.

To start with, Marcus gave a speech in front of 1200+ people under the spotlights. (That speech is here). He spoke to journalists and faced the flashing cameras on the runway. (One of my favorites is here). And he ROCKED the runway. Marcus and the Stars!

Like most successful, public events, it came after a lot of practice. He practiced his speech. He practiced his model “moves.” It also helps how many big events he has been a part of this year, TV interviews, speaking

The Year I Nearly Missed the Great Pumpkin

When I was a kid, if you missed your favorite holiday show on TV, you missed it FOR A WHOLE YEAR.  Can you remember those days? or for some of you, imagine those days?

The Great Pumpkin Charlie Brown

When Marcus was little (and he was little for a long time) one Halloween season I remember noting the night “The Great Pumpkin” was going to air. I marked it on my calander as a do not miss. I made a commitment that Marcus and I would enjoy “The Great Pumpkin” together like I did when I was a kid.

Most nights,

Heart Surgery and Happy Endings

The Best Endings Aren’t

They all lived happily ever…pleased me as a child. Even as an adult, I like a story to have a “happy ending.” In real life, though, how many happy endings are there, really? I shudder to think.

I often Focus on Beginnings

For example, the beginning of Marcus, my first and only child: A beautiful (of course) son, born with deep blue eyes (which stayed blue), a heart defect (which needed repair), and a triplicate of the 21st chromosome.

When he was nearly two years old and weighed only 18 pounds, I carried him through the hospital doors the

2017-09-30T13:41:51+00:00 Categories: Grown Ups & Downs|Tags: , , |0 Comments