Marcus’ Big Announcement #1

You know what didn’t cross my mind in those hours after my son was born and nurses spoke in hushed tones while a social service worker hovered outside my hospital room…when certain family members chose to scoff at certain other family member’s expression of love over doom?

The United Nations.

WDSD16On June 20th, 1990, I did not once think of the UN. And yet, yesterday I received an email from Down Syndrome International inviting Marcus and I to speak at

Marcus’ Top 3 Lessons From our NYC Trip

WDSD UNNYC for #WDSD16

SO it’s already been about two months since WDSD. I took notes, as I do, while we were there but I also wanted to stew in them a minute, simmer into my consciousness a little from life in the city full of every language, highest of highs and lowest of lows, decadence, poverty, and the arts. Our trip kicked off with March 21 at the United Nations, listening to advocates from around the world; It was amazing and I shared my wrap up of

Five Ways We Are Celebrating WDSD – Join Us!

worlddownsyndromeday

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World Down Syndrome Day!!!!!!

 

Seriously. I love that 3-21 is World Down Syndrome Day.

This year 3-21 falls on a Saturday and you know what that means…Stuff to do all weekend long! This week is a huge gear up and we are all Go Go Go!

Who? What? Where? How can you join in, too? Well my friends, you’ve stopped at the right place ‘cause I’m giving you the skinny right now on

Celebrating #WDSD2014 and The Good Life Tour

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World Down Syndrome Day is a big deal.

In 2011, For the first time I witnessed a large and influential set of worlddownsyndromedaypeople speaking in favor of my son’s rights and discussing the path to improving his health and longevity. It was the first time I saw groups of self-advocates standing side-by-side with international decision makers. I sat watched all of this from home via the UN website.  So much information, my brain practically seeped from my ears. 

This year’s focus is on: “Health and Wellbeing – Access

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