Baby!I cried when he turned one and I knew heart surgery was on the horizon. I cried when he turned five and we were fighting with the public schools. When he turned 11, and…Why did I cry when he turned 11?

I sat next to my dad and said, “My birthdays don’t bother me. His make me a wreck.”

“That’s because you’re getting old.” My father suggested with his normal tact and compassion.

No, that wasn’t it. It was the unknown. With each year we were one year closer to the great unknown: Adulthood.

Earlier this week the website posted a reprint of my blog, “What are you going to do when he grows up.”  It struck a chord with many readers.

It’s not healthy how we obsess over the future with our children who are differently abled. When a “normal” or “typical” child is starting kindergarten, do we obsess over how she will find a job? Not usually, no. Yet from the moment my son was born, I was constantly prodded about his future and what was I going to do about it.

Um. Well…

What I wished I had done was less crying on birthdays.

Before Marcus was 21, but adulthood barreling down upon us, I was out with some girlfriends and the subject of our kids came up. One mother of a young adult beamed with delight – “It just gets better every year!” she said. I envied her. I thought, when does my “It gets better” happen?

Then it did.

Marcus' 21st Birthday 228It could be because once Marcus reached “adult” I felt like we had beat the odds. Remember, when he was born I was told he wouldn’t live past 30. For him, each medical situation proved to be a bump, not a roadblock, and even now we strive to become healthier every day. The fact that we can enjoy what we enjoy together more: Theater, concerts, karaoke. That is fun. I think even that Quinn and Marcus can enjoy a good (or bad) “Alien” movie together actually fits into the puzzle.

Is Marcus fully accomplished, so to speak, in his adult life right now? No. But, Quinn and I are still trying to get where we want to be. So I guess the idea that when your child becomes and adult and BAM everything for life is supposed to be set up – well it doesn’t apply to any of the Grown Ups in our household.

**I’m breaking in here to mention this is a re-post. This blog originally went up in 2014, Marcus was about to turn 24…Before his book, before his speaking at the UN, before, before, before and this next weekend he will turn 30. Wow. 30.”

And for the record, worrying and preparing are not the same thing. If I did as much preparing as I did worrying, maybe I’d have the state, red-tape, and vocational training wrapped around my finger. Maybe. What a bunch of wasted energy.

You know what I’ve realized this week, it’s so obvious I’m ashamed to mention it.

All of the time I worried about Marcus and adulthood, I looked at what other families could, would, had to do and I forgot. I literally forgot that it would be as it always has been: Him.

It’s like I imagined this stranger would come into my life and say, “Here I am.”

“Who are you?” I’d ask.

“Well, I’m the adult Marcus.” He’d say.

And my Marcus, my boy, would be lost and far away. That, friend, is what I really feared. It’s like…I thought that I’d be facing this adult Marcus life all alone. Like I forgot that Marcus would be with me for it all.

Guess what? 

Here he is, a growing spirit beside me every day. A sense of humor I rely on. A willingness to try new things with me. A thirst for music and theater and being a part of it all. A creative spirit that Won’t. Shut. Up. All of this that is and always has been Marcus.

You know, the day he was born and I held him in my arms, my heart was so full of a new and unrecognized love, it literally hurt. And it only grows. Oh geesh – now I’m crying again.

Everybody’s story is different friends, and this is mine today; I’m so thankful tomorrow, Marcus is having another birthday.