Marcus Speaks His Truth

Early in  Amy and the Orphans, is the line, “I speak my truth.” Today we’re going to hear a #Truth Marcus shared with me about the show. 

We celebrate Amy and the Orphans, with Jamie Brewer (Amy) and Eddie Barbanell (Andy u/s) for many reasons. One is that while the audience is lulled by small identifying steps with characters who are “typical,” they are simultaneously being prepped to listen to a person with

Today’s Topic: Laughter

In 7th grade, I prepared my first, “front of class” speech. My topic: laughter. Why do we laugh? More than just funny, sometimes out of nervousness, fear, and breaking tension. I included some cheesy, cheesy jokes, to…you know…break the ice.

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I’m told that my father’s family once said to my mother, “The problem with your family is you judge happiness by laughter.” I’ve reflected on both what’s true, and maybe not so bad, about this perspective. I should write a post about that…later.

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I recently wrote, “LEARNING TO CELEBRATE LOVE” I put a lot of thought into it (more than

The Real Challenge

What One Young Man with Down Syndrome Wants You to Understand

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Yesterday I learned a little bit about a man with Down syndrome named Stephen, and his mother, who wished he had never been born. I don’t know much except what I read from a tabloid article written by his mother. When Stephen was very young, about three years old he cried in the night, a lot. He cried for many hours because of…Pain? Confusion? The article did not say, it was not his story, it was his mother’s, so we learned that she

2018-02-10T10:23:44+00:00 Categories: Grown Ups & Downs|Tags: , , , |15 Comments

Some of the Marcus Equation

When you have a child with an intellectual disability the tests come early and often. Medical tests, intervention tests, IQ tests.

IQ tests are the worst.  On the parents.  I’ll never forget Marcus’ first IQ test, he was three. He communicated mostly with action/expression and sign language. But not that day, well I take it back. He was clearly communicating, just not compliant. An important differentiation that, as his mother, I could see but the Ph.D. in the room clearly could not, Or did not.

One moment that stood out, the psychiatrist held before Marcus a doll with its head off, laying

2017-12-17T12:58:32+00:00 Categories: Grown Ups & Downs|Tags: , , , , |4 Comments