Measuring the Year

“Five hundred twenty-five thousand six hundred minutes
How do you measure, measure a year?”

 

I measure in lessons, in losses, in failures, in wins, and of course, in words. Each of these are compiled in spreadsheets (as I force the abstract into quantifiable cells) and many bits shared right here, under the public eye. Hmm, the public forum. For those of you following along, you may recall the first post of 2019 began:

Oh. My. God. This effing January.

So, there’s that.

I didn’t “triumph” over 2019, like my public facing plan. And for 2020, I’m still

2019-12-22T11:05:32-06:00Categories: Grown Ups & Downs|Tags: , , , |2 Comments

Down Syndrome and Creativity

WOW – Let’s Flashback, this post originally went live 5 years ago, November 2014. So much still applies, I’m reposting it.

Via Puppets in the Early Years

Marcus being Orange Marcus being Orange

When Marcus was much younger, just beginning school, he used to form his hands into puppets and they would chatter away. Not all of it was understandable, but words slipped through. One of his early teachers suggested we discourage this, but we resisted. I felt then that if that’s how he wanted to process and share

2019-11-22T11:50:11-06:00Categories: Grown Ups & Downs|Tags: , , , |1 Comment

Come So Far And Yet

 

Just less than thirty years ago, I was handed a book written for parents of a new baby with Down syndrome that began with, “Do not put your baby in an institution.” Literally, this was the first line of the book.

Still, a social worker asked if we were “taking the baby home.”

Sigh.

Today I know women who coach doctors and nurses about how to share information about possible, potential, and available, instead of “put away.”

Be Beautiful, Be Yourself

Last weekend Marcus and I attended an

Dignity, Risk, Harness, Support

As for me…

 

To be clear, When I look at this view I am not filled with excitement or exhilaration. I am filled with fear and anxiety.

It’s said that fear can’t kill you…I wonder.

I’ve mentioned before about my father and brothers, they often make decisions pursuing pleasure, whereas I often make decisions based on avoiding pain. In fact, I wonder if we even process pain, and the memory of pain, in the same ways.

In the strengths finder application, my